tag:blogger.com,1999:blog-9175362385039466640.post4233159512973707304..comments2023-11-07T11:27:28.658-05:00Comments on Diabetesaliciousness © 2007 - 2024: NEWS FLASH: Transitioning To Adulthood Is A Bitchk2http://www.blogger.com/profile/04167099133092135850noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-9175362385039466640.post-17877955082382524402013-03-31T00:22:57.632-04:002013-03-31T00:22:57.632-04:00It was endearing to read about someone else anger....It was endearing to read about someone else anger. I don't remember much about my pediatric team. I do remember them being nice, but not much about the process. I do remember the transition to adult endo's, and how nobody wanted me to go to the only one in town. I did, though, and rarely ever saw him-- maybe once or twice a year. I got fed up and changed.... but the support for adult diabetics is not what it is in pediatric care, that's for sure. BetaBanditnoreply@blogger.comtag:blogger.com,1999:blog-9175362385039466640.post-5626188447000524952013-03-29T16:56:06.837-04:002013-03-29T16:56:06.837-04:00Stephen -
EXACTLY
Nicte-
I'm so sorry you h...Stephen - <br />EXACTLY<br /><br />Nicte- <br />I'm so sorry you had a rough time & I'm so glad you found the DOC!<br /><br />Abbs - <br />Transitioning is hard & I hope the feedback in these studies are quick, swift & bring about a change sooner rather than later! <br />What really bothers me is how long the first phase of the study took - They've been tracking these children since 2002, 11 years is a long time between phases.<br /><br />Scott - <br />It's all about peronalities - both the HCP & the patients! <br />I'm glad your transition was a smooth one - you're lucky! <br />And yes - small town endos can be very good - A big name Dr. Assholes - not so much!<br /><br />Careyliscious - <br />Good for you for being the change that you want to see!<br /><br />Bruce ITM - <br />Let me be the first to wish you a happy 38th Diaversary!!! <br /><br />Beth - <br />While I see your points and agree with most of them, I am still disturbed by the article. They've been following these peds patients since 2002 - that's over a decade. How long will the phase 2 portion of the study be? <br />I hope it's not another 11 years because a lot damage could be done by then & we can't turn back the clock.<br />Kellyk2https://www.blogger.com/profile/04167099133092135850noreply@blogger.comtag:blogger.com,1999:blog-9175362385039466640.post-18318098154070481012013-03-29T15:42:01.079-04:002013-03-29T15:42:01.079-04:00So I had the exact same initial reaction. Also, th...So I had the exact same initial reaction. Also, the tagline with the photo "He might be ready to leave the house, but is he ready to control his diabetes?" was horribly condescending. <br /><br />I went and read the article in Pediatrics (I'll email anyone a copy if they want it). I think Abby's thought about figuring out how to BEST transition kids is more what they are going for. <br /><br />In the discussion, they talk about youth with higher a1cs transition to adult care at later ages, potentially because the peds endo is more concerned about those kids with her a1cs and recognizes that they need more support. <br /><br />In fact, they suggest that part of the problem is the lack of consistent care during this time period, not necessarily the transition itself. So when you have to leave pediatric care at age 20, maybe you don't go see a new endo right away (fueled by burnout & other psychological issues associated with that age), and so even though you're at the time in life where you might most need the support of an endo, you don't go do it because it takes more effort than calling for a follow-up, or having the automatic every 3 month visit. <br /><br />I think the media coverage is overstating the "effect" of the transition. This paragraph from the discussion sums up the issues pretty well, I think. <br /><br />"Further research is urgently needed to explore reasons why glycemic control deteriorates in late adolescence and young adulthood and if alterations in the timing of transfer from pediatric to adult care can prevent this outcome. Young adulthood is a time of multiple changes, not only in health care needs, but also physical maturation and evolving relationships with others. A better understanding of how life transitions affect health-related behaviors, access to health care, and health care use is needed. More specifically, research focused on examining patient, parent, and provider attitudes and behaviors, as well as health care system processes and obstacles will help to identify potential causes and interventions that may mitigate the risk of deteriorating glycemic control with transition in this population.<br /><br />Research is also needed to understand how providers can best support the adolescent/young adult population. Previous studies have shown that physician continuity and intensive care coordination can help improve patient transition to adult care. Studies of various counseling strategies, including family-oriented counseling and youth empowerment strategies, are also promising."<br /><br />So I'm hoping you'll hear back from the lead researcher, because, if only from the article, I think the intentions and the understanding the article provides is more fruitful than the media coverage suggests. Remember that any interventions on improving transitions have to be based on good research showing the problem, so sometimes stuff that seems like NODUH to us living the disease is the necessary first step to a larger program. <br /><br /><br /><br /><br /><br /><br /><br />Anonymoushttps://www.blogger.com/profile/10321295585397386202noreply@blogger.comtag:blogger.com,1999:blog-9175362385039466640.post-48871131338268145422013-03-28T22:09:18.973-04:002013-03-28T22:09:18.973-04:00Your post made me realize that I didn't get an...Your post made me realize that I didn't get an endo till I'd been PWD for 20 years. Diagnosed at 17, it was 5 days in the hospital then home with the R & N, GP's making changes annually. First endo-type was a Dr that ran a diabetic clinic in the Czech Republic for 30 years. He told me that I had 40 years from onset as a T1D. He (hopefully) was wrong, I'm hitting 38 years in May. Good post, thanksBruce in the mountainshttps://www.blogger.com/profile/17042195170560163850noreply@blogger.comtag:blogger.com,1999:blog-9175362385039466640.post-76311724663214572102013-03-28T20:02:12.239-04:002013-03-28T20:02:12.239-04:00Kelly,
I don't have diabetes, but my daughter...Kelly,<br /><br />I don't have diabetes, but my daughter does. She is 13 and I fear the day we will say goodbye to her amazing diabetic team. <br /><br />I have heard that 50% of newly diagnosed type 1 patients are over the age of 18. What a disservice it is to not have a more positive transition. <br /><br />One of my friends has a son who was diagnosed at age 19. He was diagnosed with bg of over 1000 and was literally at death's door. They stabalized him in the hospital and sent him home the next day with insulin...no training. It took her 4 months to find a doctor for him. This is so extremely frustrating!<br /><br />I am graduating this summer with a masters in licensed professional counseling. I would like to serve the type 1 community...especially those transitioning from ped to adult...or those newly diagnosed past 18 years old.<br />Anonymoushttps://www.blogger.com/profile/02706212651009535347noreply@blogger.comtag:blogger.com,1999:blog-9175362385039466640.post-52589717865777102322013-03-28T14:35:55.336-04:002013-03-28T14:35:55.336-04:00I'm glad you posted about the good small-town ...I'm glad you posted about the good small-town adult endo as well as about Dr. Bigname Asshole endo. I think the experience is more about the personalities of both doctor and PWD and less about the general age of the doctor's patients.<br /><br />For me, I was glad to get out of pediatrics. In my late-teens, it still seemed awkward for me to go to my "regular" doctor (pediatrician) and sit in a waiting room with balloons painted on the walls, toys on the floor, and crying babies everywhere. That followed me to endocrinology, where I was ready to finally become an adult.<br /><br />I was also ready to remove the proverbial handcuffs that tethered me to my parents and came with being a "child".<br /><br />I didn't find the transition tough at all. It was in the same hospital, and (I assumed) all my records followed me. But of course there were things that were different, the most obvious is the fingerstick A1C versus the previous lab A1Cs. Plus, the new doc had a good personality (the pediatric doc didn't have a bad personality, he just didn't have much of one at all) and we got along. But most of all, I felt like an adult, and I felt like *I* was in charge: not my parents, not my doctor. And that was a real confidence booster...Scott Ehttps://www.blogger.com/profile/00259475635753627498noreply@blogger.comtag:blogger.com,1999:blog-9175362385039466640.post-46030191124540194452013-03-28T14:00:37.948-04:002013-03-28T14:00:37.948-04:00I've been doing a lot of research on this on m...I've been doing a lot of research on this on my own actually, for professional reasons. The study is probably testing a way to transition these patients, not just finding out IF it's a problem. There are a lot of studies going on trying to find out the best way to transition kids with chronic disease, and they are well worth the time and money. I'm hoping that's what it is, and that you get some good feedback. abbyhttp://www.sixuntilme.comnoreply@blogger.comtag:blogger.com,1999:blog-9175362385039466640.post-30610134839055094282013-03-28T13:41:02.568-04:002013-03-28T13:41:02.568-04:00I read this at the office and I'm trying my be...I read this at the office and I'm trying my best to not cry my heart out.<br />Your experience with Dr big name, was the way my diagnosis was done. This idiotic doctor just kept asking whether I was fat as a kid and to not complain about my illness ever again, do the shots and shut up.<br /><br />I was diagnosed in high school so I didnt make a transition from ped to regular endos but I feel I was still a child when I was diagnosed and trying to get to adulthood with this illness was so complicated, I wished I had found the DOC sooner! <br /><br />Hopefully this investigation will spark up the interest to raise funds to a cure or something like that and not just to make the ones involved look good.<br />xoNictéhttps://www.blogger.com/profile/14396419522529894482noreply@blogger.comtag:blogger.com,1999:blog-9175362385039466640.post-83410290178218172352013-03-28T13:34:58.077-04:002013-03-28T13:34:58.077-04:00Kelly, you're right again.
How about a ment...Kelly, you're right again. <br /><br />How about a mentor program where older adults with diabetes help younger adults with diabetes make the transition? <br /><br />Sometimes, we all need assistance... thanks for sharing your feelings and experiences. StephenShttp://happy-medium.netnoreply@blogger.com