Diabetes And Changing Things Up~

I’m a go with the flow kind of gal, except of course when I’m not. 

I love new experiences, meeting new people, and exploring new places. 

But I’m not great with big life changes - even when they're good - and I know that about myself - It’s one of the things I struggle with and I know it holds me back. 

I have no idea why I struggle with life changes so much - but I’m pissed that I do and I’m actively working on fixing this issue - and some others. 

I liken how I embrace life changes to my love of swimming in the ocean - Seriously, it’s like one of my favorite things in the world to do! I love swimming, surfing, body surfing waves, and embracing my inner dolphin.

 I’ve been going out over my head since I was a kid  - jumping off a boat and learning to swam towards Lucy the Elephant at the age of 4. I bought my first surfboard at 25, There was a time I'd take a wave runner out on a 40 mile ocean jaunt no problem - and to this day I swim in the ocean until I start to turn blue. 

But as I grew up, I want from diving in the ocean without thinking... to easing my way in, jumping and dodging waves through the shallow water, cursing the cold waves as they hit my body and splashed my face - until I was finally ready to dive in and take the plunge. 

FTR, I know in my heart and head that if I would just take the plunge and dunk my head under the waves, the water would immediately feel warmer - but I still don't. 

I ease my way in - It takes me a good 5 minutes to dive under my first wave  - and then I’m home free, feeling groovy, and riding waves until I'm too tired to continue. 

Which brings me diabetes - after years of wearing an insulin pump with an expired warranty and using the same brand glucose meter for most of the time, I knew it was well past time to make some changes in my diabetes tech management. 

It’s not like I didn’t want to - I totally did. But my old insurance deductible was super high (and my co-pay, not what I would call generous,) and don’t even get me started on commitment issues re: warranties. 

But enough was enough, I was well overdue and I knew I needed updated diabetes technology in order to not only stay healthy, but to utilize the elixir of life we call insulin. And I was THIS CLOSE to meeting my deductible - it was the perfect time to switch things up. 

Sidebar: I’ve been dealing with abdomen scar tissue issues for quite some time - problematic on all fronts - not only absorption issues, but I was literally having to change my infusion site every 24 to 34 hours, instead of every three days because of absorption issues - and that gets freaking expensive. 

I tried my legs and that would work slightly longer, but I could never navigate my arms (tubing issues,) or my back (contortion issues). 

I spent an inordinate amount of time on the phone battling my insurance company to pay for extra boxes on infusion sites, my daily 24 hour insulin insulin consumption kept creeping up and up, as did my frustration levels. 

I seriously considered taking an extended pump vacation, but after having a heart-to-heart with my fabulous Endo Dr. J, and we both felt that Insulet's OmniPod would most likely be the best solution for me. 

I could give my abdomen a much needed and extended break from infusion sites, while trying out other sites on my body. Plus, I'd have 45 days to see if the switch was working for me.

After talking with the some folks at the Insulet/Omnipod booth at the Children With Diabetes, Friends For Life Conference, the paper work was set in motion, my insurance company approved my switch from 15 years on Medtronic, to Omnipod (and paid for a nice portion of it,) and from LifeScan test strips to FreeStyle - no problem. 

Two big diabetes changes for me in a relatively short time.

Beginning with a convo at my Endo's office on June 5th, followed by a convo in Orlando this past July at CWD,FFL, and officially kicking-off on July 31st, at 3 pm, eastern standard time - when I inserted my first OmniPod. 

How's going?? 

My next post is all about my first 10 full days podding - stay tuned!!

Finally, My Experience at #CWDFFL2017 - It Was AWESOME

First my apologies for not posting sooner. 5 days after I returned from CWDFFL, I came down with a nasty viral infection (that I’d probably been fighting off since before I went to Orlando,) that left me with a low grade fever and down for the count for a little over 2 weeks.I've never felt so horrible in my life, I never want to feel that way again. 

More about that ridiculousness in another post because late or not, I want to share my Children With Diabetes Friends For Life, experience.

And yeah, I agreee - IT'S ABOUT DAMN TIME.

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When People ask me about the Children with Diabetes, Friends For Life Conference - it’s hard to put into words - and it’s not. 

Amazing

It’s truly amazing being around people who “get it,” without ever having to utter the D word. 

The immediate friendship and feelings of “me too," that green and orange bracelets bring not only prove that you are not alone - it’s also makes you feel safe and connected  - even if you’re attending the conference by yourself - TRUST ME. 

HAPPY - so much happy!

Watching First Timers became part of the mix makes my heart happy for several reasons. I was a First Timer once, I know how it feels - I also know how it feels when the First Timer fears wash away and the feelings of happiness and community replace them - it’s freaking magical. 

Having a green bracelet wearing child see your green bracelet and watch as you change out your insulin pump reservoir between sessions, and then come up to you all excited saying: Mommy and I just changed out my reservoir too!

And then you get excited and all of a sudden you’re grabbing snacks from the snack table and have become fast friends - and friends for life. SO COOL.

All of It

Laura Hugs; hanging with my DOC peeps in real life, watching some special children with diabetes (and their equally amazing siblings,)  I’ve loved over the years grow up and continue on with the fabulous - And damn if I don’t swell with pride!

Hanging out with friends who have become family and that you see for one week every year  - so many hugs, so much laughter - and it makes you feel great to be alive!

Meeting new adults and children with diabetes and having them become part of the tribe.
And don't even get me started on the Jalapeno Margaritas!

Caring - so much damn caring. 

The unspoken rule of “no man or woman left behind,” and seeing it put into action time and time again. Like when your friend experiences a low and you and your friends spring into action - one goes and grabs a soda, the other offers glucose tabs, and another stays with with your friend - and a Disney employee name Christal from the Snack Bar, runs up with juice and food because Disney not only knows that  CWD,FFL is in town, but are there to help anyone in a green bracelet experiencing a low/ high blood sugar, or anything in-between. 

Whether it’s having friends (who are parents to a grown up t1 daughter and newly minted mommy,) pick you up juice boxes and bottled water at Publix because they worry about you having middle of the night lows - and the wife waits in her car while her husband walks you back to your room and refuses to let you carry any packages. 

Also, said D mama was very specific as to what brand and flavor of juice boxes required because she knows PWD (people with diabetes,) have their preferences. 

Or your PWD friend from the UK, who brings you Cadbury chocolate from Merry Olde England because she knows how much you dig British sweets! 

Safety

There’s the feeling of safety felt when I experienced a nasty low on my way back from the exhibit hall - and my friend Joanne ( an awesome chick and DMomma,) sat with me while I downed a Mickey Mouse Ice Cream pop. 

Then Jeff Hitchcock stopped over and said - it’s OK, you’re not alone -and again, the feelings of safety and security washed over me. 

AWE 

I kid you not, you're awe inspired every damn day at CWD,FFL. In awe of the children, adults, staff, speakers, performers, faculty and yes, in awe of the sunsets! 

On a personal note, I watched in awe as children with and without diabetes come up to the IwishPeopleKnewThatDiabetes booth and drop truth bombs and words of wisdom - same goes for the adults! 

Personal note, part 2. There’s the gift of my own personal journey -not always diabetes related - personal insights from D friends, when they saw that I was  struggling with things having nothing to do with diabetes - and care enough about me to take me aside and talk. 

You know who you are. Thank-you and IRREPLACEABLE. 

HOME
CWD,FFL feels like home, because it has become just that to all those who attend. 

Bottom Line: Every day at CWD,FFL there are boatloads of wisdom; tears, laughter, (SO MUCH LAUGHTER,) knowledge, understanding and everything else in between - you are surrounded by those feelings for a solid week.

The Children With Diabetes, Friends For Life Conference is wonderful and overwhelming all rolled into one - and I wouldn’t trade that week in Orlando (IN JULY,) for anything! 

If you have a child with diabetes, or an adult with diabetes - give yourself the gift of attending CWD,FFL!

Here's the LINK to all the upcoming CWD conferences so you can do just that!

And you can thank me when we’re hanging out by the pool next July ;)