Friday, May 22, 2015

Saying Goodbye To The Snap - SIGH.

Due to being sidelined with bronchitis, laryngitis and trechitis - I’m behind incredibly behind on posting about many things - And I'm sorry for that, but I was REALLY sick.  
Now I’m scrambling to play catch up now that the second round of antibiotics and the first round of steroids have kicked in. 
Here are my thoughts on Asante shutting their doors and the Snap going the way of the Deltec Cozmo
I was leaving the BD Thought Leader event (more on that VERY SOON,) last Friday afternoon when I first heard the rumblings that Asante, makers of The Snap insulin pump had closed its doors - and my heart broke. 
My heart broke for the people who worked at Asante ( I was a member of their Patient Advisory Board,) and knew many of the employees by name - I’d worked with them and and I know that they had people with diabetes interests at heart. 

And now those amazing people have lost their jobs and we have lost D Advocates on the industry side -and we can't afford to lose any D Advocates.
And my heart broke for people with diabetes  - those who wore the Snap and whose lives were changed in a positive way because of The Snap.  And those who were considering and eager to trial their pump, but who have lost that opportunity forever.  

Snap’s trial allowed people to trial their pump for 1 month, without any cost to the person with diabetes - no other insulin pump company offered or offers such a trial - And I don't understand why. Christ, even car dealers allow for test drives.

And my heart breaks because another incredible insulin pump option was taken away from us - and as people living with diabetes, we need all the options we can get. 
Life and life with diabetes is all about choices (and using our collective diabetes voices,) when it comes to the treatment(s) that work best for us. “Your Diabetes May Vary,” and choices are KEY.
I loved The Snap pump and I saw my numbers (both my blood sugars and my daily insulin requirements went down,) improve during my 7 weeks on the Snap - And had my insurance company been a bit more liberal in their coverage, I would have committed to it. 
I hate that Asante couldn’t get the funding they needed to go public and pulled their IPO plans off the table in March and I hate that partnership opportunities fell through. Mike Hoskins over at DiabetesMine covers The Snap’s demise in detail, HERE and Christel over at a writes eloquently on the subject and about her heart snapping in two, HERE. 

I hate that we have one less diabetes option in our arsenal and that those who wore the Snap are forced to find other options and I hate that it was because of money.
If patients could believe in a product, why couldn't industry step up to the plate? 

Some pump companies are stepping up to the plate and offering “official Snap Replacement Programs.”

As I hear of more, I'll update the list~
But for now, I'm bummed out, BIG TIME.

Tuesday, May 19, 2015

Lost In Sinus City

Sinus City, as in real people sick since last Thursday, which was also my birthday. 
I'm talking sick in the head - As in head so clogged I can barely hear and coughing so much from the dreaded post nasal drip that the back of my head aches from my brain continually rattling in my skull. 
I think I pulled a muscle in my lower abdomen from coughing and every time I try and rest, my head needs to be propped up on a 90 degree angle. 
If it’s not chicken matzo ball soup with sriratcha or popsicles, I don’t want to eat it, and the antibiotic I was put on last Tuesday doesn’t seem to be doing much of anything 
All I want to do is sleep and I’m tired of feeling this way. 
Up until 2008, I never suffered from allergies or sinus infections and this Spring has been the absolute worst by far. I’ve become a person who constantly carries tissues in her handbag, keeps a box of tissues in her car and is generally miserable unless she has antihistamines at her disposal at all times - and even then I still feel and sound like crap. 
Luckily, the laryngitis that arrived on Thursday, departed this morning, but my normal voice has not returned. Basically I sound like a man, baby.  
Or as various family members have told me: I sound like Brenda Vaccaro in those tampon commercials from the 1980s. LOVELY. 
Sidebar: My siblings, cousins and I watched way too much television when we were kids. 

Appointment with an ENT Thursday morning and hoping that I will be better by then. 
So far, diabetes has played nice - Actually, diabetes has been a walk in the park compared to whatever war that has erupted and continues to reek havoc with my sinuses.

Today I'm trying to catch up on everything I missed in my Sinus City haze and come hell or high water, I will be blogging in full swing tomorrow - But wanted to update you regarding my lack of posts, lack of energy and being lost in Sinus City

Thursday, May 14, 2015

Diabetes Blog Week Day 4: Changes - Where The Hell Do I Start?

Today is day four of Diabetes Blog Week - And today's topic is all about changes in all dimensions that you'd like to see re: diabetes.
Here are my thoughts (OK, it's a rant,) on the topic of "changes," and I hope you can relate~

Changes when it comes to diabetes - where the hell do I start? 

For starters, I’d like the Diabetes Blame Games to cease. 
I’d like people (John and Jane Q Public & media folks, THIS MEANS YOU,) to get the diabetes facts instead of perpetuating the diabetes myths - regardless of the type.
Hey media - people with diabetes don’t attack, zombies do. 
Don't report about someone going into insulin shock while driving and and needing insulin - Insulin is the last thing they need and your going to end up killing someone. Ever hear of Sunny VonBulow - GOOGLE IT.
And stop with the whole “he or she suffered from a a diabetes/diabetic attack.” 
And while I’m at it, stop using phrases  “suffers with diabetes, or diabetes sufferer.” 
I don’t suffer with diabetes. I’m annoyed and frustrated by diabetes at times, but it’s part of me and if I thought of myself as continually suffering with diabetes - I’d never be able to get out bed in the morning. 
And enough with the diabetes story lines on TV and the movies that are completely wrong! Seriously, WTF. 
And while I’m on a roll - I don’t want to hear that something is “diabetic friendly." 
I don’t consider something jacked up with carbs that causes me extreme gastrointestinal distress, friendly at all. 
Here’s something to marinate on: The rift between the types will stop because we are all different branches on the same diabetes family tree and the whole blame game T1 Vs T2 and ignoring those with  LADA1.5 has got to go the way of the Dodo bird. 
 I’d be thrilled if people stopped telling me that if I just gave up all things white, I’d be off the demon insulin in 30 days - for the record you can’t cure or reverse diabetes in 30 days - if it were that easy none of us would be blogging about diabetes and Pharma would lose a valuable cash cow. 
Speaking of Pharma, I’d love it my insulin expenses, pump supplies, and test strips (with insurance btw,) didn’t equal a God damned Mercedes car payment every month.
Speaking of insurance, they don’t make generic insulin, I need that shit to live, so stop charging an arm and a leg for  one freaking bottle of my elixir of life!
And reality check, 10X3 does not = thirty days worth of insulin pump supplies. 
Also, I can’t effectively maintain good blood sugars if you only allow me to test 3 to 6 times a day. 
And speaking of the cure - If I one more Dr./Organization says we’re 5 to 10 years from the cure, I will go so damn Jersey on them and they won’t know what hit them. 
My list of changes could go on, but I don’t have all day and neither do you. 
So yeah, I want changes when it comes to diabetes - and between you and me - it’s up to us, as people living with diabetes to make those changes happen.

Together, we need to yield our collective super powers and be the change - And I know we can do it! 

Wednesday, May 13, 2015

Diabetes Blog Week Day 3: Just In Case

It's day 3 of the sixth annual Diabetes Blog Week and it's all about about "cleaning out."  
I'm not always neat - but I'm freakishly organized when it comes to diabetes supplies. 
Ironical because I'm a self admitted diabetes hoarder - and I have no problem admitting that. 
I have shelves in my hallway closet devoted to diabetes supplies. 
Pump supplies needles, and lancets. Extra glucose meters that were sent to me that I’ve reviewed. I keep my own test strips boxes in my desk drawer, all lined according to their expiration date and always within reach. 
I keep watch on my diabetes supplies - making sure I have enough to keep me safe - and then some -and I don’t throw anything out  - I keep everything - Just in case life happens. 
Just in case I get too many error readings on my glucose meter or have bronchitis and go through test strips like water. 
Just case my new infusion site is a dead spot and sucks figuratively, but not literally. 
Just in case I get all dolled up and wear a dress, which requires that I wear Spanx - for both my belly and as a place to secure my insulin pump. SPANX kill infusion sites - every woman who wears an insulin pump knows that. 
Just in case the sticky part of my infusion site stops sticking, or I walk by doorknob that yanks me back two feet and rips out my infusion site quicker than you can say "what the fructose!”
Just in case I’m battling a nasty cold/flu/sinus infection or a cortisone shot that requires me to quadruple my hourly insulin requirements - depleting both my longevity of my infusion site and dwindling my insulin supply. 

Just in case my insurance drops me. 

Just in case of a natural disaster that shuts my local pharmacy down for 6 months. 

Just in case my last bottle of insulin hits the tile floor before my RX is due to be filled.

Just in case is a term people living with diabetes know all to well and live with daily. 

Just in case turns us into diabetes supply collectors - luckily there’s a book for that. 

Just in case has become a diabetes fear, safety net and war cry all rolled into one. 

Just in case is a part of or lives... and our lives with diabetes. 

Tuesday, May 12, 2015

Diabetes Blog Week: Moments ~

We share so much of our lives on line, it makes sense to me that we keep some moments private to keep us relatively sane.
I share a hell of a lot on my blog - the good, the bad, and the diabetesalicious moments in my life. And I do my best to be as balls out honest re: what I share with you guys, I really do. 

I find writing about life and life with diabetes extremely cathartic - And maybe it’s selfish, but I feel better when I put proverbial pen to paper and find strength in writing and reading what others write about their D lives. 

But there are some moments that are mine and mine alone - some moments/thoughts I keep deep within and I don’t know if I’ll ever share them on the Internet - And that’s OK. 
I’m allowed to keep a few things close to the cuff when it comes to my life and my life with diabetes - So are you. 
There are other moments that aren’t mine to share with the masses, because they aren’t my stories to tell - moments told to me in confidence by others who needed an ear to listen and a shoulder to lean on - and I respect the sanctity of those moments, guard them closely and keep  them “in the vault,” forever.

In my opinion, it's those small moments that we keep to ourselves or share privately with others that allow us to give the majority of our moments so freely and straight from the heart, to the DOC - And I'm cool with that~

Monday, May 11, 2015

Diabetes Blog Week: I Can...... I Have... And I Will Continue~

Today is the first day of Diabetes Blog Week - The brain child of Karen over at Bittersweet Diabetes. Todays topic is "I can," and I love that topic.
Here's my "I Can" post - I hope you dig it~  
I Can… I Have… And I Will Continue. 
I’ve travelled the world and eaten cupcakes on two different continents, I’ve slept in at least 5 different different time zones and 11 different countries. 
I’ve tried to make the Buckingham Palace Guards smile and laughed out loud when I encountered the Manneken Pis in Brussels. 
I cried when I arrived and departed Italy and left a little piece of my heart there - The same can be said about a waiter from Spain I met in Brussels - but that's for another blog post. ;) 
I’ve watched the sun rise and set in Hawaii and climbed through the mist to damn near the top of Diamond Head Mountain.
I hiked a Flatirons trail the Easter after my dad passed, snacking on peanut butter and honey sandwiches and finding God in the views.
I’ve worked jobs I’ve loved and jobs I’ve hated - some physically demanding (waitressing in college at a beach resort), and most mentally challenging.  
I’ve parasailed over the ocean, snorkeled in the waters of Isla Mujeres  - back when it still had, but was quickly losing it's status as a small fishing village - And came this close to missing the last ferry back to Cancun - running frantically down the pier and screaming in spanish for the ferry to stop. 

I climbed to the top of Chichén Itzá’s, El Castillo Pyramid (climbing down was a lot more difficult,)  and watched in awe as the shadow of the snake appeared down its side during the Spring Equinox. 

I’ve paddled my long board out past the pier and rode it damn near the shore, jet skied 60 miles along the Chesapeake and the ocean - all with diabetes. 
I’ve gone camping in Providence town Massachusetts (not a fan - I like hotels - I’m more into glamping,) so I could hitch a ride at dawn on the The Portuguese Princess - whale watching to my hearts content, during the spring migration. 

I’ve performed on stages and was a damn fine Audience Coordinator for a damn fine cooking show. 
I am practicing my craft as a writer and because of diabetes,  I found and became part of the Diabetes Online Community. And it’s because of my diabetes and my community that I’ve found my calling and my passion and became a Diabetes Advocate - SO thanks for that, guys.

And I've lived - And continue to do so - when others I loved with diabetes did not. 
And I think about them everyday - And wished the Diabetes Online Community had been there for them. 

Here’s the thing - There’s nothing I can’t do with diabetes - except make insulin - everything else is game on. 
Does diabetes get in the way sometimes and require me to plan things out more than most?
Yep, it does -and it can be a real pain in the ass sometimes, too - but that’s OK. 
I’ve found that the only limits I have because of my diabetes are the limits I set for myself. 
If I think I can’t - than I won’t - and that goes for everything in my life, including diabetes. 
It’s easy for anyone to say they can’t - because doing and becoming is fucking scary - busted pancreas or not. 
Facing the what ifs can be daunting and has the ability to stop us in our tracks. 
And there have been times in my life where I’ve let the what ifs/and the I cants get the best of me and I allowed them to keep me frozen in my tracks. 

But I’m done with that - And I’m all about embracing the I CAN, the I WILL and the I AM  in all aspects of my life.. and my life with diabetes.

But  when I do encounter those moments of self doubt and the "I cants" start creeping towards me - I will turn to the DOC - because I know you will give me the strength to plow past the "I cants" and arrive at destination I CAN with bells on!

Thursday, May 7, 2015

#tbt: Calling All Midvale School For The Gifted, Alum~

The following #tbt post was originally published on 2/14/08.  

Here's the thing, in life and life with diabetes, we all push when we should have pulled every now and then - we are imperfectly perfect - and that's OK. 


Calling all Midvale Alum

One of my favorite"Far Side" cartoons ever!
Reminds of me of this life of mine at times. While I'm an excellent dancer when the music is on, I'm a bit clumsy in real life...on occasion. Sometimes the blatantly obvious, is not so very for those of us who are Midvale alum.

For instance.....I've actually put my my pump battery in backwards and then wondered why "the damn thing wouldn't work!"

I've walked into, and almost through a screen door - with coffee in hand. No damage to the screen, but I ended up wearing my coffee.

I've put my test strip in the machine upside down and then wondered where the area was to place my drop of blood.

Once, in High School when I was deep in conversation with my 3 best buds, I actually walked smack into Stop sign because I was enthralled over my friends latest escapades, I looked at them instead of looking ahead. I don't know which hurt more, my head or my pride.

I used to give my insulin
 shots through my clothes to save time - andto secretly impress my friends. 
Of course, only when I was wearing white or some other light color, would a drop of blood decide to appear. Ironically it never once happened when I was wearing black, purple, or blue.

We all know about pump tubing and doorknobs. It's a global issue, nuff said.

I won't even tell you how I broke my arm a few years ago. Let's just say it involved preventing
 a cordless phone from falling down a flight of 16 steps - by blocking its descent at the top of the stairs,
I inadvertently caused myself to fall and ended up at the bottom.

We all push when we should pull at times, but we learn and move forward just the same.
It's very similar to dealing with our Diabetes. Just when we think we know it all about this disease, it throws us curve ball or two, forcing us to learn yet another set of rules regarding the Big D.
And we do, because we can....And because we must.