Monday, April 27, 2015

Facebook and Groupon - REALLY!?!?

Ahhhhhhh, FaceBook and their wonderful right-hand side target market advertising. 
While I was looking at my Diabetesaliciousness Facebook page, via my personal FB account over the weekend, the following ad from Groupon popped up on the right-hand side of my screen. 
Facebook, so you're telling me that I need to ensconce myself in bamboo and charcoal
slimming undergarments?!  
First: ARE YOU KIDDING ME?  
Second: What are you trying to tell me, Facebook? 
Just because my blog's name is Diabetesaliciousness and my personal page has a lot of status updates about diabetes - doesn't mean I'm over weight - And yes, as a woman of certain age I worry about my weight, but I think most people, regardless of their beta cell status or age, worry about weight. 
I'm not against slimming undergarments at all, but the continuous stream of right-hand target marketing ads consisting of "Drop weight, fast" and "Cure diabetes naturally," ads have got to go!
Also, according to Amazon - you have to have stick legs in order to get it past your thighs and the return policy for said bodysuit, blows
My legs are slim and strong- but so were many of the legs of the women who did the returning. 
But lets just say for shits and giggles that I do need to drop a if few LBs, YOU SUCK AT SUBTLETY. 
Third: Seriously, what the hell am I going to do with my insulin pump, tubing and the likes there of - and how the hell do I go to the bathroom in this contraption? 
ALSO: BITE ME.

Thursday, April 23, 2015

THANK YOU: #IwishPeopleKnewThatDiabetes - It's Not Over.


THANK-YOU. 
Thank you for taking #IwishPeopleKnewThatDiabetes Day spirit and hashtag and running with it at full speed on twitter & other forms of Social Media - and thank you for continuing to run with it! 
Thank-you for taking #IwishPeopleKnewThatDiabetes Day with less then two days notice and knocking it out of the park!!
YOU GUYS WERE AMAZING. 

Thank you for taking #IwishPeopleKnewThatDiabetes Day global. 
I’m still gathering info re: country participation, but here are the countries that I know were represented on twitter. 
Australia; New Zealand, China, The Philippines, Nigeria, Kenya, HongKong, Japan, England, Scotland, Ireland, France, Germany, Switzerland, The Netherlands, Peru, Mexico, Canada Puerto Rico and the United States. 
BIG THANKS to Kyle Schwartz and #Iwishmyteacherknew  - AMAZING. 
Special thanks to Cherise & Renza, for keeping me sane and Mike Lawson for designing the awesome logo on super short notice.
Thank you to everyone who sent me encouraging emails, Facebook messages and tweets - you guys kept me going!
Thank you to everyone on facebook who posted about #IwishPeopleKnewThatDiabetes Day before/during, and thank you for those facebookers who used the hashtag in their statuses, sharing their diabetes realities and experiences, becoming empowered and educating others in the process. 
Your honesty and straight posts from the heart educated and enlightened so many.

Thank you to everyone who doesn't have a twitter account, but who followed the #IwishPeopleKnewThatDiabetes conversation on twitter ALL DAY and were inspired. 
Thank you for reaching out to me via email and sharing your feelings privately - you inspired me to keep going. 

Thank you to those who wrote blog posts before and after and who are writing blog posts now. I not only appreciate your efforts, I love that some of you are getting back on the diabetes blog bandwagon because #IwishPeopleKnewThatDiabetes inspired you to do so! 

At midnight, the analytics for #IwishPeopleKnewThatDiabetes hashtag were: 
Impressions: 13,010,302  
Tweets:   6229
Participants: 1,158
Average tweets PH: 37
Average tweets per participant: 5

Today at 12:PM, the #IwishPeopleKnewThatDiabetes analytics:
Impressions: 13,663,739
Tweets: 6,493
Participants: 1,222
Average Tweets Per Hour: 39
Average number of tweets per participant: 5

And those numbers continue to rise.
For latest numbers go click HERE, scroll down the page until you reach  The Start Date/End Date Calendars at the bottom. 
State Date is: 4/17/2015 End Date is whatever date/time it is, and click the "analytics," button. 


#IwishPeopleKnewThatDiabetes isn’t just a day and it isn’t over. 

#IwishPeopleKnewThatDiabetes has become something  - I movement? 
I didn't want to call it anything, but that's what people are calling and that's what it's become. 
It's another way to empower those connected with diabetes all dimensions and a way to educate people who only know the diabetes myths, not the realities. 

In the coming days - I will need your help and input AND I WILL ASK FOR IT. 

Lastly, #IwishPeopleKnewThatDiabetes is the reason I found the amazing Diabetes Online Community 8 years ago. 

Our community,  made up of D peers; mentors, friends who have become both family and strong D allies & Advocates. Diabetes allies & advocates who are changing the world and the way the world sees people with diabetes~

Wednesday, April 22, 2015

#IwishPeopleKnewThatDiabetes Day Is Here!

Shoutout to Mr. Mike Lawson for the nifty logo!
While the global power of the Diabetes Online Community NEVER surprises me, it does continually amaze & inspire me. 
When I published Friday's #IwishPeopleKnewThatDiabetes post, 
(Once again, BIG Shoutout to Kyle Schwartz, a third grade teacher in Denver Colorado who created a trust building lesson plan for her third grade class called. “I wish my teacher knew.” She started tweeting her students thoughts under the hashtag, #Iwishmyteacherknew & the rest is history!)
I was thrilled to see that between Friday afternoon and Sunday evening, the #IwishPeopleKnewThatDiabetes hashtag had been shared over 400 times on twitter.

On Monday's post I proposed we use the the #IwishPeopleKnewThatDiabetes hashtag collectively today and whatever happened would happen. 


A lot is happening! 

But don't take my word for it -Checkout the #IwishPeopleKnewThatDiabetes hashtag on twitter, Facebook, Instagram, blog posts, etc - And join in NOW!!
I'll write more on subject after gather the info & my heads stops spinning :) 

Monday, April 20, 2015

#IWishPeopleKnewThatDiabetes Day - 4/22/15

Logo by the amazing Mr. Mike Lawson~
I’m happy to say that a lot of discussions were generated on twitter and facebook after Friday’s blog post, #IwishpeopleknewThatDiabetes was published. 
FTR: Friday's post was inspired by Denver Colorado 3rd grade teacher, Kyle Schwartz and her amazing #Iwishmyteacherknew teaching plan which started a viral twitter conversation after she shared her students notes
All weekend I was thrilled and incredibly inspired to see people using the #Iwishpeopleknewthatdiabetes, hashtag to express their diabetes thoughts and feelings - And I witnessed people strengthening their own diabetes voices in process -and that was amazing! 
I started thinking about having a day where people could use the hashtag in unison to express the good, (like how people with diabetes are flipping awesome,) the bad,(insurance crap, blood sugar issues, you name it,) and the diabetesalicious of it all ( as in, yes indeed you cab eat that cupcake!), when it comes to what we wish people knew about diabetes. 

So I’m proposing Wednesday April 22nd, 2015 as '#IwishpeopleknewThatDiabetes Day.' 
A day where the DOC shares their thoughts, wisdom, hearts and humor, by using  the #IwishpeopleknewThatDiabetes hashtag on the twitter, facebook, instagram, blog posts, tumblr, vine, etc.
Also, the #IwishpeopleknewThatDiabetes hashtag will be featured on this week’s #DSMA chat, which also happens to be on the 22nd at 9pm, EST.

I’m so excited, guys and I hope you are too! 

Let me know what your thoughts and I look forward to your participation in the #IwishpeopleknewthatDiabetes Day discussions. 

It's not about the numbers, it's about people feeling confident enough to use their voices and express what they feel/how their feeling when it comes to diabetes

Friday, April 17, 2015

#IWishPeopleKnewThatDiabetes

Today's post is inspired by Kyle Schwartz, a third grade teacher in Denver Colorado who created a trust building lesson plan for her third grade class called. “I wish my teacher knew.” 
The honesty in the notes the students wrote are going to hit you in the heart.   
Kyle shared some of her students notes on twitter with the hashtag, #Iwishmyteacherknew.  
Soon, thousands joined in the conversation and many teachers feel that Schwartz lesson plan changed the landscape of the classroom, encouraging trust and honesty between the students and teachers. 
According to interviews, Schwartz hopes that #Iwishmyteacherknew will encourage a dialogue that will help teachers connect students and their families with resources they need.
I've given the Kyle's trust building lesson a diabetes spin a'la "I wish people knew that diabetes.....," and with the hashtag -  #Iwishpeopleknewthatdiabetes. 
Hopefully you can relate and share your own wishes~ 
######
#IWishpeopleknewThatDiabetes
 I wish people knew that diabetes is lot harder than PWDs (people with diabetes) make it look. 
 I wish people knew that diabetes is NEVER ENDING - and that I haven’t had a day off from type 1 diabetes in 13,690 days  - nor did/do I get time from diabetes for good behavior, national holidays, weddings, funerals or mental health days. 

I wish people knew that diabetes is hard - REALLY HARD - and that there are days when the last thing I feel like dealing with is diabetes - but I don't have a choice, so I do. 

I wish people knew that diabetes can be exhausting. 
I wish people knew that because of diabetes, when I look at the food on my plate I see numbers first, food second.

I wish people knew that diabetes wasn't my fault.

I wish people knew that diabetes IS NOT a character flaw and that all people living with diabetes and regardless of the type, are amazing. 

I wish people knew that diabetes makes me cry sometimes.

I wish people knew that my diabetes has caused me a tremendous amount of guilt since I was 8 years old.

I wish people knew that diabetes causes me to say "I'm sorry," even when I'm not. 

I wish people knew that even when you do everything right with diabetes, your blood sugars can still eff with you. Same goes for diabetes complications.

I wish people knew that people with diabetes usually have a really twisted sense of humor.

I wish people knew that diabetes complications can happen - And that people shouldn't judge someone because of their diabetes complication(s).

I wish people knew that people with diabetes can have, had are having children - And that throughout the ages, PWDs have become parents. My two aunts with type 1 had children in the 1950's, so did my dad. My oldest sister with t1 had 3 children in 1976, 1980 & 1990.  
And that today women with diabetes in the DOC and beyond are having boatloads and boatloads of beautiful children - and those wonderful women with diabetes worked (and are working,) damn hard to deliver those beautiful and healthy children. 

I wish people knew that diabetes is not the reason I don’t have children. 
Life is the reason I don’t have children - it doesn’t mean I didn’t want them, because I did and I do and that it breaks my heart that I don't.
But if diabetes is the reason for someone not having children - You shouldn't judge or ignore them for not having children, diabetes or not - And you should remember that for many, it's a very personal and potentially painful subject. 

I wish people knew that I am more the sum of my parts- including my beautiful, busted pancreas. 

I wish people knew that diabetes gives you boatloads of strength and empathy. 

I wish HealthCare Professionals who still tell their patient(s) with diabetes that they "noncompliant," would stop using that term - it's offensive and defeatist and most likely will not garner the effects the HCP was hoping for hoping for. 
I wish they'd say: I know you struggle with your diabetes - lets make a game plan and work together to get you up to speed.  
And I wish they'd go a step further and let their patients with diabetes know that they are not alone and suggest seeing that they see a Certified Diabetes Educator and a therapist. Encourage them to join online communities & read diabetes blogs so they can find peer support and encouragement. 

I wish people that just because I wear an insulin pump, doesn’t mean I have the bad kind of diabetes - It means I have the kind of diabetes that makes shit gold ingots
Kidding! It just means my body doesn’t have the ability to produce insulin.
People with diabetes need insulin to live - and I’ve found that wearing a bionic pancreas clipped to my hip works for me. 

I wish people who worked for my insurance company realized what an infusion site actually was BEFORE they denied me my fourth box of infusion sets. 

 And I wish people who worked at health insurance companies realized that like a person who makes their own insulin, my body requires a different amount of insulin EVERY DAY - And that tile floors can and most almost always bust insulin bottles BEFORE your days before your refill is due.

And I wish my insurance company (and yours) realized that a 30 days worth of pump supplies does not equal 10 infusion sets - because life, in the form of deadspots, doorknobs, SPANX, exercise and million other things get in the way and 10 X 3 most certainly DOES NOT = a 30 day supply.

I wish people knew that the cupcake I’m just about to eat required copious amounts of testing my blood sugar and carb counting - and I will continue to test my blood sugar like a mad woman for hours, afterwards. 
And yes, I can and will eat that cupcake, because I’ve done the work to eat that cupcake. 

I wish people knew that cutting out white foods, drinking miracle water and downing massive doses of cinnamon WILL NOT cure my diabetes. 

I wish people knew that insulin is NOT A CURE for diabetes, but insulin has saved millions of lives and I'm grateful to have access to it every damn day. 

I wish people knew that insulin is lifesaving and that there are so many people around the globe who desperately need insulin, but don't have access to it

I wish people knew that after 90 plus years, insulin is still ridiculously expensive  - even if you have insurance. 

I wish people knew that diabetes is indeed a family affair and that parents, siblings, spouses, extended family, and friends who are family, have their own diabetes challenges and struggles. 

I wish people knew that every person with diabetes does try - and that my sister Debbie did try - she just didn’t have the right emotional tools or diabetes technology back in the Diabetes Dark Ages to succeed - And I wish I'd realized that sooner and had been more patient.

I wish people knew that diabetes and blood sugars factors aren't so cut and dry as most think and I wish people knew that there are at least 22 things that contribute to blood sugars

I wish people who wrote sitcoms actually wrote funny/truthful diabetes jokes, instead of offensive and stereotypical jokes. 
Diabetes is not punchline and your offensive jokes directly affects funding for the diabetes cure. 

I wish people, including healthcare professions, knew that the diabetes online community exists and is beneficial to every person living with diabetes and their loved ones. 

I wish people knew that diabetes requires emotional support as well as insulin. 
I wish people knew that Diabetes Burnout is REAL. 

I wish people knew that the only thing I can’t do because of my diabetes is make insulin, everything else is GAME ON. 

I could go on, but I want to know about what you wish people knew about diabetes - I'd really love and appreciate your thoughts on the subject - lets get the dialogue going! 


Addendum: On Wednesday, April 22nd, YOU CAN KEEP THE CONVERSATION GOING. 


Also, please checkout http://mydiabetessecret.com  - a place to share heartfelt & anonymous D secrets in a safe/supportive environment

Monday, April 13, 2015

Sometimes My Diabetes Game Face Gets All Sorts Of Saucy - And I'm Fine With That~

I always try and educate people about diabetes and advocate for people with diabetes whenever I have the chance - ALWAYS. 
But I'm only human -and every once in a while my Game Face gets saucy - and I'm fine with that. 
######
Spring has finally sprung and the weekend weather was in the mid 50’s, the sun was shinning, the air was fresh, and I was feeling all sorts of groovy. 
I texted a friend and we decided to meet up mid morning for a walk -and that's exactly what we did. 
After 45 minutes of low impact cardio, we stopped in front of a local coffee shop and ran into some people my friend knew. 
After introductions, we stood there talking outside the shop for a good 10 minutes - and when we saw an outdoor table emptying, we grabbed it. 
As the conversations continued, I nonchalantly removed the little black bag I always sling over my shoulder when I walk or ride my bike (it’s really small & just big enough to stash my phone; keys, glucose tabs, meters/strips,) and tested on what I thought was the sly. My meter flashed 97 and for a split second I felt like like a test strip ad. 
My head was letting me know that I REALLY needed an iced coffee with cream and sugar, and just as I was about to excuse myself and grab one, I heard someone say: Oh, you have diabetes? My sister-in-law has diabetes and she has it so bad that she has to wear one of those things on her waist to give her insulin.
Sidebar: My friend looked at me with her “ WTF” face combined with her "I'm so sorry face." I took a breath, put on my game face and flashed my friend and Sister Dip my dazzling smile and responded.

Me: Oh, you mean an insulin pump, like this - And I grabbed the Asante Snap insulin pump I’ve been trialing from my waist and held it in my hand. 

Sister Dip: Ohhhhhhh...., you wear one, too.
Then she turned red and said: Well you look really good.

FTR, I'd just walked 45 minutes against the wind, I looked like a wind blown hot mess.  

Me: Thanks, today I feel great. Look, wearing an insulin pump doesn’t mean you have diabetes "SO BAD.” It means that you’ve found a piece of diabetes technology that works for you and helps you manage your diabetes. Some people prefer to do that with injections and some people prefer to do it with a robotic pancreas clipped to their hip.

Sister Dip: No, she has it bad. She has to test her blood sugar like 7 times a day - sometimes more.  And she goes low or high sometimes for no reason at all. 
Yep, I took another deep breath before I responded.

Me: Yeah, me too - that’s life with diabetes. Lots of testing blood sugars, counting carbs, figuring things out and trying to roll with it when diabetes decides to flip out because it can. 

Sister Dip: But she has to wear that thing like 24 hours a day!!

Me: Yep, I know she does. That’s how it works. 
And I didn’t even go into explaining the whys of short acting insulin or the hows of long acting insulin or how you can do everything right , theoretically - and diabetes still can screw with you.  

Sister Dip: What do you do when you shower or swim? What do you do when you have sex!!!! 
Sidebar: The first part of the question she said in a low voice, but the second half of the question was dialed up to 11 and everyone sitting outside turned and looked at me. 
Also, did I mention that  I'd literally just met her? 
I have absolutely no problem discussing diabetes and sex, or sex for that matter - It's not what you say, it's how you say it. And Sister Dip was REALLY getting on my last nerve. 
Me: I take my pump off when I shower or swim and then I put it back on afterwards. 
As far as sex - that depends on my mood and sometimes it depends on the circumstances. But for the most part, sometimes I leave it on, sometimes I take it off.....What do you do when you have sex?? 

Sister Dip: I don’t wear a pump. 

Me: Oh, you should try it - It really spices things up!!! ;) 
And then she looked at me like I had three heads and I laughed a big belly laugh and grabbed my card from my bag.


Me: Give your sister -in-law my info, I'd love to connect with her. 
OK, I REALLY need an iced coffee, I'll be right back - you guys need anything?  

And then I went and grabbed my friend & I our iced coffees and when I came back, the discussion had changed to Game of Thrones. 
And I was glad. 
And I really felt bad for her sister-in-law. 

Wednesday, April 8, 2015

Cold Spring, Spicy Salad ~

Spring is here, at least in theory and I'm just back from 4 days in Florida (more on that in another post,) where it was sunny and warm and it felt more like summer. 
I returned home to temps in the high forties, north easterly whipping winds and lots of rain. 
I miss my family and I miss the warm weather, fresh fish, fruits and veggies. 
So last night I made one of my favorite summer time snacks, a spicy cucumber salad to keep me in the warm weather mindset. 
This salad is INCREDIBLY EASY, DELICIOUS & ADDICTING. 
At least for me - and much like the beloved pickles (a.k.a., free food) of my youth, this salad requires no bolus and allows me to achieve/maintain blood sugar nirvana sans the bolus - but of course, your diabetes may vary~
 Here's the recipe! 
Spicy Cucumber Salad~ 
Slice a cucumber in half and scoop out the seeds in each half with teaspoon
Slice the scooped cucumber halves and place in salad bowl. 
In a mixing bowl, mix Sriracha Rooster Sauce ( LOVE IT) with sesame oil & mirin - other wise known as rice wine vinegar. 
Add fresh squeezed lime juice (a wedge or two will do, depending on the size of the salad,); sea salt, cracked pepper and ginger powder to taste. 
Whisk all the ingredients together and pour over cucumbers. 
Sometimes I sprinkle sesame seeds on top, but most times I don't. 
Eat & enjoy! 
**As far as measurements - that's up to you and your taste buds - there's no right or wrong amount of spicy deliciousness in this recipe.
*** This salad will be addicting - YOU"VE BEEN WARNED.