Wednesday, July 31, 2019
I Attended #FFLOrlando19 As Ascensia Diabetes Care's Guest Reporter
(Friends For Life,) Conference -held every July in Orlando.
It's truly life changing and I highly recommend attending!
For the record: It's not just for children with diabetes!
I've attended the conference since 2012 and worked as a conference volunteer starting in 2013 and up until now.
This year I was able to attend the 20th anniversary of FFL (known on Social Media Platforms as #FFLOrlando19,) as the Guest Reporter for Ascensia Diabetes Care.
I was able to participate in the sessions as an attendee and report from FFL with a fresh set of eyes.
My first in a series of three articles spotlighting FFL is up and running on the Ascensia website.
Click HERE and check it out.
Also: Thanks in advance!
Disclosure: Ascensia Diabetes Care paid for my time and talent and also covered my flight, hotel, and expenses.
As always, all thoughts are mine and mine alone.
Tuesday, July 4, 2017
Batteries Need Charging - Headed out to #CWDFFL2017
It's been a little crazy on this end and honestly, I've been burned out as of late - like crazy burned out - my preverbal well is dry and my batteries need recharging - and I can cop to it.
Which is why I'm incredibly grateful to be flying out this morning to attend The 2017 Children With Diabetes, Friends for Life Conference in Orlando, Florida.
I can't wait to get my green bracelet on, (literally and figuratively,) and spend 5 days with friends who are indeed family.
Working and attending amazing sessions, running the #IwishPeopleKnewThatDiabetes booth, and spending time with people who "get it!"
Also, did I mention that all the cwdffl meals have carb counts listed?
follow the #cwdffl2017 hashtag and I promise to post from the Orlando!
If you're attending - I can't wait to give you a hug!
Wednesday, January 20, 2016
American Girl Diabetes Care Kit Review & Giveaway
Very cool and incredibly detailed, American Girl Diabetes Care Kit~ |
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Like everyone else in the DOC, I was thrilled when I heard the news that American Girl had created and was launching the American Girl Diabetes Care Kit for their line of “Truly Me” Dolls.
I reached out to AG and they were kind enough to send me my very own American Girl Diabetes Care Kit.
My very own American Girl Diabetes Care Kit~ |
The logbook has a stitched back binder, the insulin pump has a clip and arrow keys, and from the BG number on the pump’s screen, I've come to the conclusion that it also has CGM capabilities.
The tube of glucose tabs look just like the tubes of glucose tabs I keep in my car and my gym bag.
The medical ID bracelet is pretty and perfect for a young doll with Type 1 diabetes. Sidebar: I believe that an American Girl Doll who wears a medical ID bracelet will encourage the little girl who loves her, to wear their own medical ID bracelet/ necklace.
And I LOVE, LOVE, LOVE that American Girl included an insulin pen in their Diabetes Care Kit because just like real life, your diabetes may vary and not every little girl wears an insulin pump.
The kit’s meter has a test strip already inserted, the number on the screen matches the number on the insulin pump, and a lancing device.
All the diabetes accessories fit nicely into the kit’s carrying case, which has a working zipper and ID Card all ready for you and your doll to fill out. FYI: when I spilled water, I discovered the kit’s bag was water resistant.
And now for more awesomeness: The folks at American Girl have generously agreed to Diabetesaliciousness American Girl Diabetes Care Kit, giveaway.
How to win: leave a comment on the blog stating why you’d like to win an American Girl Diabetes Care Kit - the winner will be announced on Friday afternoon and will be chosen by Random.org.
Who can win: Anyone with diabetes no matter the age, or who has a child/loves a child with diabetes.
Friday, January 23, 2015
Giveaway: Lilly Diabetes/Disney Type 1 Diabetes Book Shelf & L.L.Bean® Backpacks!
Detailed descriptions of the books can be found here: http://www.t1everydaymagic.com/lilly-and-disneys-type-1-diabetes-bookshelf/ For the record: I've read everyone of these books and they're wonderful & I wish they'd been around when I was growing up with type 1! |
** If you are one of the winners, PLEASE don't use a box cutter/or any other tool when opening your prize, you might rip the backpack - And nobody wants that~
Tuesday, July 8, 2014
CHECK IT OUT: Jerry The Bear Has His Own Indiegogo Campaign!
I've been a fan of Jerry the Bear for quite sometime. For those of you who don't know Jerry, he totally rocks. Jerry's an interactive BWD (bear with diabetes) who does everything children and adults do with t1 diabetes. He tests his blood sugars, takes insulin from pens, counts carbs. Jerry's teaches children about diabetes through play and by always being there - And that's amazing in all dimensions as far as I'm concerned!
Jerry and I have become friends and last year I had the opportunity to interview him for Diabetesaliciousness!
Today's the kickoff for Jerry's Indiegogo campaign to raise funds to get all the 12,000 plus children diagnosed with type 1 every year their own Jerry the bear.
1. Create an Indiegogo account.2. Use the share buttons below the video to share your referral link with your social network!3. If 10 people contribute to the campaign using your referral link, you will be among the first to receive Jerry the Bear.
Friends are important in life - So are friends with diabetes - And a friend with diabetes who's with you 24X7 is priceless!
Here's a video so you can watch Jerry's awesomeness in motion!
Monday, July 7, 2014
#AwkwardDPromPic
there's a million emotions, memories and faces swimming through my head and
dimensions that I've experienced this past week so that I can actually articulate my thoughts.
But at this moment my blood sugar is 90, it's almost 4pm and I haven't eaten lunch yet.
Also: This photo makes me smile. 'I love to smile - Smiling's my favorite!'
And so is CWD!!!
#awkwardDPromPic This picture makes me laugh out loud & from my belly every time I see it! |
Thursday, August 29, 2013
An Interview With Jerry The Bear
I'm all about D education, D buddies, not feeling alone and empowering others, including kiddles, when it comes to people with diabetes owning their diabetes!
Sidebar: How cool would it be to see a Gerry The Bear in every Peds Endo waiting room!
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Jerry is an interactive BWD (bear with diabetes) who helps children with diabetes navigate life with diabetes. www.JerryTheBear.com |
As an All Star champion, I want to let all the kids out there know that having type 1 diabetes will never stop me from doing anything or from dreaming big--and it shouldn’t stop you either.
Tuesday, November 6, 2012
Diabetes Fact: We Are ALL Diabetes Sheroes & Heroes
Thursday, June 28, 2012
Children With Diabetes Friends For Life 2012: I CAN'T WAIT.
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This pic was taken on the road from CWD Focus On Technology - The next Green Bracelet shot will be taken AT CWD FFL 2012!!! |
Seriously, the last time I went on vacation by myself it was to Eastern European country and that didn't turn out so well.
Friday, February 24, 2012
My Weekend Plans: The Children With Diabetes Focus On Technology Conference

Thursday, November 11, 2010
Talking With Jeff Hitchcock Of ChildrenwithDiabetes
This past summer at second Roche/Diabetes Social Media Summit, I had the opportunity to see Jeff in his element, running The Children With Diabetes Friends For Life Conference in Orlando, Florida and I learned that not only was he was a smart guy, but he also had a big heart.
Jeff was more than busy overseeing CWD, but he took it all in stride, and never hesitated to stop what he was doing to talk with CWD families. I watched him as he had conversations with CWDs of all shapes in sizes and I was amazed that he seemed to know all the kids by name - and I'm talking hundreds of children!
He asked them about life and school and what was new in their worlds & called them by name as he passed them in the hall. And I have to say, that’s what really impressed me about him.
Last month I interviewed Jeff via email about CWD, and I hope you like it!
FULL DISCLOSURE: I drank the CWD Kool-aid this past summer and became a convert. Seriously, I can’t wait to go back to Diabetes Land!

CWD founder & President, Jeff Hitchcock at the 2009 CWD Friends for Life UK conference.
What are the three main reasons that you started CWD way back when, in 1995?
I’m not sure there were three reasons. I had been interested in starting a diabetes support web site since I first got access to the web in the fall of 1994. I found myself laid off in June 1995 and that seemed a good day to launch CWD, which is exactly what I did. Initially, the site had a page about my daughter Marissa and a couple of other pages, but I don’t recall exactly what. I hoped that Marissa would meet other kids through her page, and that my wife Brenda and I could share our experiences with other parents.
Did you ever think that CWD would become what it has?
No, I certainly had no idea that CWD would grow to become what it is today. I really had no plan other than to create a web site and learn about the web.
I know that CWD was purchased by Johnson & Johnson in 2008. How has becoming part of J & J changed CWD? What would you like to tell people who might worry about Pharma’s influence on CWD?
The key reason to accept J&J’s acquisition offer was to enable CWD to grow, both online and at our conferences. We had plans to expand our staff, rebuild our web infrastructure to take advantage of the new and evolving social networking tools, and reach families living in Canada and the UK through new conferences there. We succeeded in bringing the Friends for Life experience to Canada and the UK. We’re still working on the web part.
To answer your second question, the many companies involved in type 1 diabetes make it possible for CWD to exist. This has always been the case. Without online advertising and conference sponsorships, Children with Diabetes would not be here. As for influence, I have always let the science guide me. For example, CWD is a big proponent of insulin pumps. Why? Because the science shows clear metabolic and psychosocial benefits.
Some might say, “But you’re part of an organization that sells insulin pumps. Of course you support pumps!” But they would be wrong. We support pumps because of the science. The same goes for insulin analogs, frequent glucose monitoring, and continuous sensors. We let the science guide us. And while we promote therapies, we are agnostic about brands – for example, we support pump therapy, but not a particular pump brand.
You’re responsible for creating an event/org that’s given thousands of children & their families the opportunity to experience what life is like in “Diabetes Land.” And from what I’ve read & seen first-hand, sometimes it’s the first time many of the families in attendance have ever met others who live with diabetes 24 X7. I’ve been told that life long bonds and friendships are formed at CWD. What’s it been like to watch these families and their children come together with others year after year?
The friendships that have come from our conferences, especially our annual Friends for Life conferences, have been truly amazing. I think what surprised me the most was seeing kids with type 1 who had never met becoming such intense friends almost immediately. These kids (as well as adults) share something – life with type 1 – that transcends distance and age in a way that I never fully appreciated.
Many CWD kids and adults are closer to their CWD buddies than they are with their best friends at home. It was completely unexpected, and is completely wonderful.
What’s it like to watch a new family experience CWD for the first time? Is there a metamorphosis of sorts?
There are two ways to experience CWD: online and a conference. Most people experience CWD first online. Typically, their child has just been diagnosed. They’ve learned about insulin, injections, and glucose monitoring but are still in shock.
They find in CWD the comforting voices of moms and dads who’ve been there and can help guide them in their journey from the shock of diagnosis to the confidence required to care for a child with diabetes.
We see a similar evolution at our conferences. On their first day, families new to Friends for Life, for example, can feel overwhelmed at the sheer size of the event. By the end of the conference, these new families have changed – they’re easily navigating sessions and the exhibit hall and the social events. Many families return the next year, and by the third year, these families have the confidence to become volunteers at the conference, helping new families. It’s an amazing experience.
I worry that some CWDs aren’t actively participating in their disease because of their parents’ fears. As a former CWD, who grew up with two type 1 siblings and who lost a sister to type 1 at an early age, I understand parental fears because I saw how diabetes affected my parents first hand. But I'm concerned that if children aren’t given the opportunity to actively work with & participate with their parents as a team re: their diabetes, growing up and transitioning into independent adults living successful lives with type 1 will be extremely difficult.
Owning your diabetes is hard enough, but when you've never been allowed to actually take part in your diabetes - it can become a huge obstacle!
What are your thoughts?
And as a parent of a former CWD who is now living as an adult type 1, what advice would you feel comfortable sharing with other parents on that subject?
As a parent, our primary goal for our children is to shepherd them safely into adulthood. For us parents of kids with type 1, we have an additional responsibility – to help our children to become healthy adults living with type 1. As such, we have an obligation to involve our kids in their care to the extent possible. The level of involvement varies by age (chronological and emotional), but in the end, it’s our kids who have diabetes, not us parents, and their success as an adult with type 1 hinges in large part on how well we transition responsibility to them as they mature.
So I’m in complete agreement with you. With that said, there is no single way to achieve this goal. Different families will find their own way. At CWD, we work very hard with each all of our kids, from pre-school to college, to teach them best practices and to provide an environment in which they can find great education and emotional support to help them on their journey.
Does CWD offer scholarships for families to attend, and if so how would a family go about applying for a CWD scholarship?
The Diabetes Scholars Foundation (www.diabetesscholars.org) provides scholarships for families and adults with type 1 to attend CWD conferences. They also fund college scholarships for young people with type 1 diabetes.
Jeff, I know that in 2010, there’s been a lot of discussion about bringing more adults with type 1 into the Children With Diabetes Friends For Life 2011 Florida Conference, and I’m all for that! I think I know that answer, but I'm going to ask anyway! What’s your reasoning behind opening up CWDFFL to adults with type 1 and what can adults with type 1 expect from CWDFFL in 2011, both at your national & international conferences?
When I started CWD, my daughter Marissa was eight years old. She is now 23, living in Florida and working as a nurse. From a very personal perspective, I’m interested in making a difference for adults with type 1, since my “child” with diabetes is now an adult. Also, and equally important, as Friends for Life has grown, more and more adults with type 1 have come. We have to ensure that the programming at Friends for Life meets the needs of everyone who attends, and that includes adults with type 1.
Besides the fact that CWD is adding more adult type 1 related activities, what else will 2011 hold for CWDFFL ?
In addition to the new programming for adults with type 1, new for 2011 will be a teen driving clinic, which will offer CWD teen drivers advanced accident avoidance training to help reduce their risk of crashing. Teens already have a higher risk of accidents than older drivers, and people with type 1 diabetes who have tight control (A1c under 6.9) also have a higher risk for accidents. The teen driving clinic has been shown to reduce accident rates among its graduates by over 70%, which will help our CWD teens learn to drive better and safer – and to understand why it’s so important to check their blood sugar every time they get behind the wheel.
Anything else that you consider “diabetesalcious” that you’d like to share with us?
Very simply, I consider myself very fortunate to have met so many wonderful people in the world of diabetes. It’s a club we’d all rather not have joined, but once in, it’s nice to have discovered that the members can be quite amazing.
Jeff, thanks for taking the time to answer my questions!