Ashley Rose over at http://talesofswaging.blogspot.com wrote a fabulous guest post about the diabetes Ebb & Flow of it all, while I'm attending JDRF's Government Day - And I really appreciate it!
Ashley Rose describes herself as: "1 part loving daughter/granddaughter, 1 part stressed out student and 100% Bawdy Diazon (est: 05/09/2008). Lover of cupcakes and high heels (and cupcakes with high heels on them). Hater of that scratchy noise cardboard boxes make when you’re folding in the flaps."
As PWDs, it's really easy to feel bogged down by all of our routine maintenance. It seems as though every time we turn around we have an appointment of some kind. PCP, Endo, CDE, Ophthalmologist, blood work, etc., etc. Just like a car, we need routine checkups and every so often, we have to go in for a full inspection.
With all these appointments things usually seem as though we're always "go go go" when it comes to diabetes. But between the “go go go” is the “wait wait wait.”
When we're low, we wait to come back up while dizzy, headachey, shaking, sweating, and sometimes even crying. When we're high, we wait to come back down while dealing with fuzzy sweater teeth and the feeling like our heads are caught in their own special vice grips.
At the blood lab, we wait to be seen and after, we wait some more. We wait for test results that serve as a sort of Diabetes Report Card no matter how much we try NOT to look at them that way. We anticipate what our numbers might be and stress and obsess over what the response will be from our doctor(s).
At the doctor's office, we wait for what’s usually a 15 minute guest appearance focusing on areas of our d-management that can be improved. If there’s a change in our treatment regimen, we then wait some more to see if there’s a positive impact on our bgs and a1c.
And while research is going on around us with the ever present "Mouse Cure du Jour,” we patiently wait for our cure. While we wait, we hear our insurance companies repeatedly say no to us which makes us have to determine what sacrifices need to be made in order to afford our life saving medications and diabetes paraphernalia.
This ebb and flow of a d-life can take a toll on the way PWDs look at it. It can seem as though diabetes is all there is and all that we are. But we – and our d-lives – are so much more than that; our diabetes has just added another dimension to all of us. Sure, it’s added this hurry up and wait pattern that would drive anyone up a wall, but it’s also added compassion. It’s added strength, determination, patience, perseverance, and an overall badassness that only comes with being a PWD. With the discovery of the D-OC, it’s also added the best group of friends I’ve ever had and I’m proud to be amongst all of you.
It’s when we’re caught up in the ebb and flow of diabetes that we need to be reminded of this the most. Perhaps A.A. Milne said it best, “promise me you'll always remember: you're braver than you believe, stronger than you seem, and smarter than you think.”
What People Are Saying About Kelly Kunik's Diabetesalicious Humor
"I laughed so hard I puked all over my pump -Just kidding......
Kelly's intimate knowledge of living with diabetes makes her the perfect person to poke fun at all of our little eccentricities. If laughter really is the best medicine, then Kelly should be nominated for Sturgeon General." Gary Scheiner - Certified Diabetes Educator, Owner & Operator of Integrated Diabetes Services, Author of "You Can Control Diabetes" and "How to Think Like A Pancreas." Marx Brothers Fan for life, T1 for 20 years .
"Kelly Kunik performed her Diabetes Comedy Act at the Diabetes, Exercise, & Sports Association (DESA) National meeting in Colorado Springs in June of 2007. She had the room laughing all night! It was great to see the light side of Diabetes for once...."
Rick Philbin, Type 1, Board of Directors, DESA
"Kelly was very engaging with her humor and positive attitude in looking at life with Diabetes on a lighter side. Everyone in my Diabetes Support group lowered their glucose levels with laughter that evening!"
Bryony Crane, RD CDE
Virtua Diabetes and Nutrition Svs
"Dr. Kelly keeps you laughing.......Great bedside manner!"
Boston Charlie - T1 30 years
"As a Diabetes Educator, I'm always looking for new ways to help patients. Kelly Kunik offers a unique way of educating patients through laughter. There's a tremendous validation in Kelly's approach - Everybody thinks that no one once else has diabetes related issues, day & day out. Whether it getting your tubing caught on a door nob; acting out with a low blood sugar, or dealing with the same old questions. Silly or serious, Kelly's observations allow patients to feel better about themselves. When people feel good about themselves, they practice better self management. IT'S ALL GOOD. We all had so much fun the night Kelly spoke to my Type 1 support group."
Cheryl Marco, RD, CDE Thomas Jefferson University Division of Endocrinology and Metabolic Diseases