Why do I, and by “I” of course I mean “WE,” need to continually play defense, even when we feel like skipping the game entirely and sitting on the sidelines until we're ready to grab the ball.
And yeah, I can't believe I'm using a sports euphemism - I'm so much more of an "Arts & Entertainment" Chick.
Because I’m fighting off some sort of something in the cold/infection variety since Sunday, I’ve been dealing with elevated blood sugars, a scratchy throat and slightly higher than normal body temp between 98.9 & 99.2.
I've been popping extra Vitamin C, craving early bedtimes, chicken soup and spicy food.
And because of diabetes technology, I’ve increased my temp basal rate to 129% and that seems to keep my blood sugars in the normal range and I can go about my day without skipping to many beats.
It also means I’ve been going through insulin like water (between 54 and 56 units per day on average since Sunday) and the same goes for infusion sets. I’m literally changing out my site every 24 hours - And not because I want to, but because it’s been syphoning so much insulin subcutaneous , it literally craps out somewhere between the 24 & 32 hour mark.
The not so great news: How does one explain to their insurance company that they are going through insulin and infusion sets because their body is actually preventing "real people sick," from occurring, thus requiring a shitload of insulin, test strips and pump silhouettes in order to do so?
Not only do insurance companies not understand the “diabetes math” of it all, but that don’t understand that that “your diabetes may vary,” depending on the day, the week and the year.
You might be staving off an infection in January that require copious amounts of everything - no matter what the insurance company thinks you require.
Which means by the time you're better, you’ve already gone through 1 box of Silhouette infusion sets and have started into your second box, both of which were part of the four boxes included in your 3 month supply (FTR: I have pay extra for that fourth box,) that was delivered on December 29th.
I’m lucky, my Endo gives me insulin samples - And I still have a 3 unopened bottles before my mid February appointment - but by the looks of things - I’m going to be cutting it close.
As of today, I've gone through one whole bottle of insulin since January 10th.
This afternoon I will start a new one - What if I go through that one in 13 days?
What about PWDs who don’t have insurance?
What about Children in developing countries who don’t have access to insulin?
Sidebar: Spare A Rose is just around the corner, you can literally “spare a rose, save a child,” and provide 1 month of insulin for a child in a developing country for just 5$
And you know what? It's the best 5 bucks you'll ever spend! CHECK IT OUT!
People with working pancreases require more insulin when they eat certain foods.
So do we.
We have to pay for our insulin, infusion sets, test strips, extra and otherwise - And we have to pay extra when our bodies require extra - And that SUCKS.
I wish insurance companies would allow for a cushion, a backup of supplies for all the variables of life and life with diabetes.
Real people sick/preventing RPS and what is required for both. Insulin requirements varying from day to day, sick or not. Deadspots, tile floors and their magnetic pull towards the last bottle of insulin. Error messages on meters and CGM transmitters that get funky before their time.
Anyway, that's how I'm feeling and I just needed to share, because I know I'm not the only one who's dealing with all of the above - And we are in this together.