When I was little and newly diagnosed, there were a few classmates who called me “Diabetes Head.” Which was a stupid name and made absolutely no sense. I cried at home, but laughed it off at school, and may or not have mentioned something about said classmates mothers being whores who wore combat boots in the process.
Most of my classmates were good about it,& I’m working on a future post about that time in my life, and what my classmates thought and taught me all these years later, but that’s for another time.
When I was in college, my friends always looked out for me, not because I had diabetes, but because that’s what friends did. Still, I think they worried a lot. SO much so, that they were in peoples face at the first spark of idiots regarding diabetes.
Stereotypes regarding Diabetes SUCK. We are often told we are to fat; eat too much sugar and HFCS. Our parents are chastised for poor parenting skills.We get dirty looks every time we bolus for a cupcake.
Many feel that a life with diabetes is “Steel Magnolias” and that we’ve basically dug our own grave so to speak.
We get “the look,” when we tell folks about our diabetes.
You know the one. It’s a cross between pity,and “Well, you asked for it,” look.
NO, we didn’t ask for it. But we accept it and we live great lives despite diabetes and the idiots who spread diabetes misconceptions.
These misconceptions lurk at every turn. At work; at school, in a restaurant, or on the train- anywhere the public sees us. People either consider you tragic, or marvel that your living any life at all. . Our diabetic buds across the pond (Diabetes UK) sent me an email this morning telling me about a video they produced on the subject, called “Setting The Record Straight.”
It's posted above can be found on both their website & You Tube
The script was based on comments that real type 1 kids hear everyday. Kid or not, it hits home. Take a minute to watch and send the video to someone who might need a Type 1 Diabetes “refresher course!” Kerri wrote a great post about the video and diabetes stereotypes over at SUM this morning and also eferred to some wonderful examples on the subject by both Sara & a George, who tweeted about D misconceptions. Be sure to check them out!
POST SCRIPT: Today on Twitter, I was reminded just how easily the diabetes stereotypes are spread. Coincidence that I'd just received an email from Diabetes UK or fact? YOU BE THE JUDGE.
I had looked up #HFCS on Twitter’s Trending Topics and there were a massive number of tweets regarding the subject. Scrolling along, I found that someone had tweeted something along the line of” “wanna be a diabetic? Eat #HFCS.” And then there was a tinyurl to an article linking the two. Now, I know that HFCS causes obesity in this country, which can lead to type 2 Diabetes and I know that in her heart, this “tweeter” was in the right place. I HATE HFCS! But I also know t2 is genetic and that all Diabetics (t1 & t2 alike) are constantly being told “if you just cut out all the refined sugars and flour in your diet, you’d be off insulin in a month!”
I tweeted her back and said “#Diabetes is not character flaw & we have 2 fight that #stereotype EVERYDAY. I could run marathons everyday & still need insulin.”
I continued to Tweet her about my family history & eating habits because she actually thought that might have something to do with it. Then I tweeted about diabetes stereotypes and sent her a direct link to the Diabetes UK video. Guess what? She retweeted the diabetes FACTS, and I was happy that another person learned something about what being a diabetic means.
Having trouble viewing the vid (not you or your blog, won't come up on the UK site either....figures....maybe I knows I am Not in the mood for it...)
Any who. Rock on. Stereotypes be damned! And that is why I work from home and Hide form the public because I don't have a permit to carry a firearm. I mean.... ;-)
Here's to continuing to Educate those that Need it.
Scott- Well said! Fitting in as a teen is difficult, and even more so when you add diabetes to the mix. The phrase "Diabetes Head" kept going thru my mind as I watched the video. It's amazing that hurtful things said in the school yard so long ago can still be remembered when your reminded of it!
My Diabetesalicious Life- A TOTAL DIAZON. A T1 Diabetic since age 8. Diagnosed on Halloween/Parents anniversary,hence the reason Im a Diabetic Humorist-timing!
More importantly, Im a Diabetes Advocate, Consultant, Motivational Speaker, and Lover of cupcakes!
Diabetes is a huge weed whose tendrils have wrapped around my family tree.
In my immediate family of 8,4 of us were diagnosed with T1. Me,my dad,2 of my sisters,my nephew,2 of my Aunts and 1 cousin.
My mothers Grand Mother suffered from Type 1,and possibly a great uncle.
Genetically speaking,we are medical oddities. In 1979,Josolin Clinic did a study on our family DNA. Of course we never were told the result. I like to think we helped the cause.
My sister Debbie died from diabetic complications in 1991 at the age of 33. She suffered for 10 years and had been a diabetic for almost 25.
I think about her everyday. I wish her life had been different.
I love the ocean, believe laughter is key and I dont take this life for granted and do the work required to live my best life.
I laugh every day and am passionately spreading the word about living a great life w/Diabetes!
Upcoming Diabetes Speaking Gigs and the likes there of
7/22/09-7/23/09 I've been invited to the Roche Diabetes Care And Social Media Summit in Indiana and am very much looking forward to attending. As always, I'l be blogging about my experience! Stay tuned~
6/22/09 The American Diabetes Association/Donovan McNabb Diabetes Camp for Kids
6/09/09 Virtua Hospital Diabetes Support Group for Adults
3/10/09 J&J Animas Pump Company Panal Discussion - "How Has Insulin Pump therapy Changed Your Life?"
10/22/08 Virtua Hospital Diabetes Support Group for Teens - More info soon!
9/16/08 Scottish Rite Towers Assisted Living Community Diabetes Info & Chat For Seniors
9/3/2008 The Insulin pump Club of Greater Philadelphia & Delaware Valley "Pumpers Banquet" - Philadelphia, PA
7/16/ 2008 - Senior Assisted Living Center - Chatting about Diabetes with The Seniors
1/28/08: Juvenile Diabetes Research Foundation International Diabetes Walk Awards Ceremony at Citizens Bank Arena, Philadelphia, PA. Snow Date 2/8/08
12/5/07: Jefferson University Endocrinology and Insulin Pump Staff & Patient Get Together
6/2007 DESA - Diabetes, Ecxericse and Sports Association's National Meeting in Colorado Springs -
What People Are Saying About Kelly Kunik's Diabetesalicious Humor
"I laughed so hard I puked all over my pump -Just kidding......
Kelly's intimate knowledge of living with diabetes makes her the perfect person to poke fun at all of our little eccentricities. If laughter really is the best medicine, then Kelly should be nominated for Sturgeon General." Gary Scheiner - Certified Diabetes Educator, Owner & Operator of Integrated Diabetes Services, Author of "You Can Control Diabetes" and "How to Think Like A Pancreas." Marx Brothers Fan for life, T1 for 20 years .
"Kelly Kunik performed her Diabetes Comedy Act at the Diabetes, Exercise, & Sports Association (DESA) National meeting in Colorado Springs in June of 2007. She had the room laughing all night! It was great to see the light side of Diabetes for once...."
Rick Philbin, Type 1, Board of Directors, DESA
"Kelly was very engaging with her humor and positive attitude in looking at life with Diabetes on a lighter side. Everyone in my Diabetes Support group lowered their glucose levels with laughter that evening!"
Bryony Crane, RD CDE
Virtua Diabetes and Nutrition Svs
"Dr. Kelly keeps you laughing.......Great bedside manner!"
Boston Charlie - T1 30 years
"As a Diabetes Educator, I'm always looking for new ways to help patients. Kelly Kunik offers a unique way of educating patients through laughter. There's a tremendous validation in Kelly's approach - Everybody thinks that no one once else has diabetes related issues, day & day out. Whether it getting your tubing caught on a door nob; acting out with a low blood sugar, or dealing with the same old questions. Silly or serious, Kelly's observations allow patients to feel better about themselves. When people feel good about themselves, they practice better self management. IT'S ALL GOOD. We all had so much fun the night Kelly spoke to my Type 1 support group."
Cheryl Marco, RD, CDE Thomas Jefferson University Division of Endocrinology and Metabolic Diseases
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Featured Blogger 4/12/09 to 4/18/09 & 11/16/08 - 11/22/08
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4 comments:
You rock Kelly.
Set 'em straight!!
Having trouble viewing the vid (not you or your blog, won't come up on the UK site either....figures....maybe I knows I am Not in the mood for it...)
Any who.
Rock on.
Stereotypes be damned! And that is why I work from home and Hide form the public because I don't have a permit to carry a firearm.
I mean....
;-)
Here's to continuing to Educate those that Need it.
CP-
Don't hide, the world need to see your face and hear your voice!
And your nutty sense of humor is certainly a plus!
k3
The first part of that video was hard for me to watch and remain emotionally centered, which surprised me.
It's tough growing up. But it's tougher growing up and having to figure out diabetes too.
Scott-
Well said! Fitting in as a teen is difficult, and even more so when you add diabetes to the mix.
The phrase "Diabetes Head" kept going thru my mind as I watched the video.
It's amazing that hurtful things said in the school yard so long ago can still be remembered when your reminded of it!
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