I'm supposed to get my blood work done tomorrow for my Endo appointment next week.
Here's the thing: My blood sugars have been in the crapper since the middle of last week, I have a nasty summer cold and sore throat and I'm currently on a temporary basal rate that fluctuates anywhere between 119% and 125% over the last 5 days.
And FTR: I feel like crap. besides the cold and sore throat, I have a blood sugar headache and my neck hurts.
I know it shouldn't matter if my labs show a high and or elevated fasting blood sugar -especially since I'm fighting off a cold and a sore throat.
I know my lab work isn't about the fasting blood sugar, it's about what's going on in my body since my last Endo appointment, not the #blood sugar I had when I had my blood drawn.
And my Endo, the Rocking Dr. J never chastises me for a high and or higher than normal fasting blood sugar - He gets that every blood sugar number has a story and wants to hear that story - with no judgement.
But for some stupid and deep seeded reason a high fasting blood sugar matters to me - And it always has. It's like I'm #dstigma - tizing myself.
Of course, there's a 50/50 chance that A1c has gone in the wrong direction and hyper focusing on my fasting blood sugar this time around is some sort of avoidance issue.
My question: Am I the only one who feels the need to have an acceptable fasting blood sugar when it comes to lab work or am I just completely OCD?
Showing posts with label #dstigma. Show all posts
Showing posts with label #dstigma. Show all posts
Wednesday, July 16, 2014
Monday, July 14, 2014
Stop The #Dstigma & Run With The Diabetes Advocacy
There’s been a lot of talk about the stigma associated with diabetes as of late, a.k.a. #dstigma. On June 15th there was a PFDC, Johnson & Johnson twitter chat moderated by #DSMA discussing DStigma at this year's ADA that addressed the subject head on.
Diatribe put together a great Storyify re: the #dstigma panel discussion they participated/presented on last week at FFL & why we need to discuss it.
I was helping in another FFL session so I missed this & I'm so grateful that Diatribe storified the session!
And #dstigma was brought up multiple times in regards to #DiabetesAdvocacy last week during Diabetes Hands Foundation's #MasterLab at #CWDFFL14.
Speaking of #Masterlab - Diatribe breaks down the #Masterlab via Storify, HERE.
And Kim has a great #Masterlab debrief today over at Textingmypancreas.com and so does Sue over @ Diabetes Ramblings ~
And the following is my 2 cents on the subject~
#########
I Googled the word “stigma, and this was the first thing that came up:
Look, none of us should feel shame because we have diabetes - but we do.
All of us living with diabetes and regardless of the type, shouldn't feel disgraced because we bear the scarlet letter, D. But we do.
None of us should feel that we’ve dishonored ourselves or our families - but we do.
No PWD should feel Ignominy & opprobrium (OK, I’ll admit that I had to look both of those words up), but we do. Ignominy means public shame or disgrace & opprobrium means harsh criticism or centure. Sound familiar? It should because I know that we’ve all felt shame, discraced or centured - A.K.A.: Why are you checking your blood sugar in public?!”
All you need to do take a look at how diabetes is presented in the media 90% of the time and you’ll feel shame and disgrace - Not to mention anger.
And none of us should feel like we've we’ve failed because our pancreases and metabolisms have - But we absolutely do.
And none of us should feel humiliated by our diabetes and what our diabetes requires us to do - but there are moments when we've all felt that.
How many times have we said “I’m sorry” to the people we love because our diabetes is behaving badly - even when we do everything right?
And how crappy does always feeling like we have to apologize for our diabetes feel?
We perpetually find ourselves playing the role of defense with diabetes and #dstigma - And it wears us down and beats us up on a daily basis - If we let it.
There’s dstigma within our own community - the us verses them when it comes to type 1 verses type 2 and acknowledging that LADA 1.5’s exist.
Here’s the thing: Every single person living with diabetes or loving and or caring for a person with diabetes is part of the same Diabetes Family Tree, no matter the type.
Regardless of the type, we are all part of the same D Tree - Just difference branches.
And if we’re going advocate for diabetes and elevate #dstigma successfully, then we must stop with the #dstigma within our own community.
We need to unify and act as one community.
then embrace the KISS of Diabetes Advocacy , a'la Christel!
ALSO: #RockOn
Diatribe put together a great Storyify re: the #dstigma panel discussion they participated/presented on last week at FFL & why we need to discuss it.
I was helping in another FFL session so I missed this & I'm so grateful that Diatribe storified the session!
And #dstigma was brought up multiple times in regards to #DiabetesAdvocacy last week during Diabetes Hands Foundation's #MasterLab at #CWDFFL14.
Speaking of #Masterlab - Diatribe breaks down the #Masterlab via Storify, HERE.
And Kim has a great #Masterlab debrief today over at Textingmypancreas.com and so does Sue over @ Diabetes Ramblings ~
And the following is my 2 cents on the subject~
#########
I Googled the word “stigma, and this was the first thing that came up:
![]() |
| Sound familiar? |
Add a “d” or the word diabetes in front of the word 'stigma' to the definitions above & you’ve got #Dstigma.
Look, none of us should feel shame because we have diabetes - but we do.
All of us living with diabetes and regardless of the type, shouldn't feel disgraced because we bear the scarlet letter, D. But we do.
None of us should feel that we’ve dishonored ourselves or our families - but we do.
No PWD should feel Ignominy & opprobrium (OK, I’ll admit that I had to look both of those words up), but we do. Ignominy means public shame or disgrace & opprobrium means harsh criticism or centure. Sound familiar? It should because I know that we’ve all felt shame, discraced or centured - A.K.A.: Why are you checking your blood sugar in public?!”
All you need to do take a look at how diabetes is presented in the media 90% of the time and you’ll feel shame and disgrace - Not to mention anger.
And none of us should feel humiliated by our diabetes and what our diabetes requires us to do - but there are moments when we've all felt that.
And how crappy does always feeling like we have to apologize for our diabetes feel?
The diabetes guilt and the #Dstigma it causes is an anchor around all of our necks, one that many of us have become so accustomed to wearing that we actually forget it’s there - But it drags us down none the less.
And even if you’re not familiar with mythology, each of us can relate to Atlas, the man who carried the weight of the world on his shoulders for eternity, because we continually carry the weight of diabetes on our shoulders for what seems like an eternity. We perpetually find ourselves playing the role of defense with diabetes and #dstigma - And it wears us down and beats us up on a daily basis - If we let it.
There’s dstigma within our own community - the us verses them when it comes to type 1 verses type 2 and acknowledging that LADA 1.5’s exist.
Regardless of the type, we are all part of the same D Tree - Just difference branches.
And if we’re going advocate for diabetes and elevate #dstigma successfully, then we must stop with the #dstigma within our own community.
We must work together and use our powers collectively as Diabetes Advocates to create real change on all levels re: the public, private and governments perceptions of diabetes and what living with diabetes entails.
WE ARE IN THIS TOGETHER.
Lastly, if you want to stop #dstigma, educate others and advocate for real change, ALSO: #RockOn
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