Showing posts with label Diabetes Dark Ages. Show all posts
Showing posts with label Diabetes Dark Ages. Show all posts

Monday, September 24, 2018

Diabetes In The Wild At The Harvest Moon Party~

Friday night I received an invite via text to a Saturday night Harvest Moon party, promising good people, good fun, and a beautiful view of the moon.
Sidebar: Tonight (September 24th,) is the official Harvest Moon for the Americas - but it’s pouring buckets in my neck of the woods so I’m not sure I’ll see it. 

But I digress. 

Cut to Saturday night. I drove over to the party, parked my car and with pumpkin bread in hand, walked through the front door and into the kitchen - where I was immediately greeted with hugs and by people I haven’t seen in ages, while simultaneously being introduced to new faces. 

Thanks to kismet, I had two “diabetes in the wild,” encounters with two kick-ass women with personal and professional connections to diabetes. 

"Diabetes in the wild," encounter number one occurred outside on the deck - where my friend was talking to a young woman. I didn't know anyone out and the deck and felt like a dork. My friend motioned for me to come over. I did, he introduced us and mentioned that I wrote a Diabetes Blog. 
Turns out she was a grade school teacher who had a student with t1. 
She told me how she’d become aware of all things diabetes related and was learning more everyday. 
We talked about growing up with diabetes, she asked me about my low and high blood sugar tells and I told her.
Two weeks into the school year and this woman knew a lot about t1 and clearly wanted to learn more. Quite frankly, I WAS IMPRESSED. 
And IMO, her t1 student was lucky to have her as both a teacher and a friend. 
I gave Teacher Lady a few resources including CWD and Coco The Monkey.  
HELLO KISMET. As soon as I mentioned Coco, I remembered that I had a set of Coco books in my trunk. 
Sidebar: I was going to give the books to a local t1, but she already had them - so the books had been living in my trunk for a month.

I went out to my car; searched my trunk and found the Coco books, went back inside and handed them over. Teacher Lady couldn't wait to check them out over the weekend and then read them to her class!  

We exchanged numbers and I told her to keep in touch.
Later on in the evening, when I was bolusing via my Omnipod PDM for some crazy delicious autumn leaf sugar cookies, Teacher Lady walked over and said to me on the sly: You good? 
I told her I was and we both laughed. Girlfriend had my back and didn’t blink twice about me bolusing for cookies.

The second “diabetes in the wild” moment occurred later on in the kitchen, when I met a mom of a t1. dMama's daughter was now a mother herself and had lived with diabetes for over 3 decades. 
Like magnets to steal, we started talking about all things diabetes related. 
We discussed surviving the Diabetes Dark Ages, and dMama told me that the very first glucose meter her daughter ever used cost over a thousand dollars and wasn’t covered by insurance.

We discussed scar tissue, diabetes idiosyncrasies, the cost of insulin, and everything in between. We talked about diabetes challenges - back in the diabetes dark ages and ones we struggle with in real time.
I told dMama about the Diabetes Online Community and peer support and gave her some links and info I thought her and her daughter would find helpful. 
Once again I found myself exchanging contact information with someone who “got it.” 

As I put the key in the ignition, I looked up at the moon, partially hidden by deep purple and navy night clouds, and thought about how we are all connected - and how once again, diabetes proves it. 
The amazing kick-ass women I’d met both live near me, each with personal and professional connections to diabetes, and I’d never met either one of them until now - even though we shared mutual friends. 

Bottom Line: The universe is big, the world is smaller than we think - the world of diabetes - even smaller. The moon is magic, the universe knows what it’s doing - and we are meant to meet exactly when we do. 

Thursday, October 13, 2016

My "Diabetes Back In The Day," Article Is Live On T1EveryDayMagic.Com !

A few months ago, the folks at T1EverydayMagic reached out to me about writing a “Diabetes Back In The Day,” article for their website. 
I was excited and proud that they asked, I’ve lived with diabetes for almost 4 decades (gulp,) and the way we treat diabetes has changed tremendously -and for the better! 
For instance and sidebar: Back in the day, we didn’t have a Lilly/Disney character called Coco the Monkey who lived with T1 diabetes! 

Going down memory lane re: my life with D, reinforced how far we’ve come in terms of diabetes tools and management. 
Diabetes is hard work - everyone single one of us living the diabetes life knows that. 
Technology is key to managing out diabetes, the D diet has become so much more user friendly over the years, and as you and I know - support makes a huge difference - THANK YOU DOC!

 Today being Thursday, as in #tbt, my article is the #tbt post on T1EveryDayMagic's Facebook page.  
Here’s the direct link to my article on the T1EverydayMagic website.
Please give a read and hope you can relate, feel free to share the post with others if you're so inclined, and thank you in advance from the bottom of my busted pancreas!

Also, be sure to check the 70s kitchen pic of my sister Debbie and I, featured in the article. I love that picture of her so much. 

 And take note of the super deluxe ponytails yours truly is rocking!

Wednesday, October 21, 2015

"Back To The Future Day," Makes Me Visit My Diabetes Past

Today is “Back to The Future” Day and the Internet is all a buzz with everyone and their mother, debating what "Back To The Future II," got wrong and got right.   
 USA Today even ran a special edition today that is straight from "Back To The Future II."
People continue to bitch about the lack of hover boards and flying cars  - and I get it. 
I’ll be the first to admit that I’ve always been a fan of the hover-board concept. 
To me it would be like surfing on the land instead of the sea ( and I know it’s a skateboard sans the wheels, but whatever,) I could still really get into that.  
And as of late folks have been losing their shit because Nike has been hinting via teaser press releases re: the Nike Air MAG Self lacing sneakers becoming a reality. 
And that’s great, especially for older people and those who suffer from diseases/injuries that attack muscles and motor skills  - I fully support the idea of Nike Air Mag Self Lacing sneakers - and I love the fact that Nike is sending the first pair of those sneakers to Michael J. Fox, who lives with Parkinson's Disease. 
But when I think of the concept of going "back to the future", I always end up going back to my diabetes past -  I think of my busted pancreas magically staring to producing insulin after a 38 year hiatus and with no anti-rejection drugs. 
I think of my Peds Endo telling my 8 year old self that a diabetes cure was 5 to 10 years down the pike.
10 years became 20 and as of October 31, 2015 I will celebrate 38 years of living with t1 diabetes.
I’m incredibly grateful for the advances of diabetes technology and the advent of fast acting insulins, I'm glad to leave the Diabetes Dark Ages behind - I haven't had a day off from diabetes in over 13,000 days, I'm tired of adulting with diabetes, but am so very grateful for the life I live.  
Also, I feeling like I’m forever saying, ”HELLO.... MCFLY,” when it comes to talking/fighting/begging my insurance company to cover me for more infusion sets, more test strips and better prices on the life saving elixir of life called insulin - that I require to walk this earth as part of the living. 
Same goes for dealing with the public and the media's diabetes misconceptions.

Yep, a hover board would be awesome... but a busted pancreas that started to produce insulin without anti-rejection drugs would be better. 

So while I can appreciate the wave of nostalgia regarding “Back to The Future Day,” and the significance of October 21, 2015. I still find myself focusing on the significance of October 31st and what it represents regarding my diabetes past and my/our diabetes future~ 

Friday, December 5, 2014

Diabetes Forces Us To Try New Things When It Comes To Managing Our Diabetes - And That's A Good Thing~

We keep moving forward, opening new doors, and doing new things, because we're curious and curiosity keeps leading us down new paths.
Walt Disney
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Here’s the thing about living with diabetes. You're always learning new things about yourself and your diabetes - That never stops, whether you’ve lived with diabetes for 37 years or 37 months - And that’s actually a very good thing. 
I'm so grateful for the changes in diabetes medicine, technology and attitudes these past 37 years  - And I will fight tooth and nail to never go back to the Diabetes Dark Ages.
I can't even imagine managing my diabetes the same I did when I was first diagnosed 37 years ago - And I probably wouldn't be here if things had never changed - Or if my parents and I hadn't been open and receptive to those diabetes changes.
Now yes, sometimes exploring and trying new D management changes can be incredibly annoying and frustrating, for sure - because we all have our comfort zones - And our diabetes comfort zones & changing things up can sometimes make you want to throw your diabetes crap out the window and scream bloody murder.... or so I've heard. (COUGH, COUGH.)
But the fact that diabetes sometimes forces me/us out of our comfort zones (Yep, I had a slight freakout before I started the insulin pump,) and forces us to try, learn and adapt to new ways in our dealing with diabetes makes it easier for me/us to learn, adapt and try new things in other areas of our life. 
Look, I still have issues with change - especially big changes, like figuring out where I want to move and "going for it." But I'm really working on making those become a reality instead of just talking about it.
 I LOVE to try new things, except for foods made with liver and skydiving because the thought of jumping out of a plane FREAKS ME OUT. 
But HUGE kudos to our amazing Aussie DOC friend, Renza over at Diabetogenic for jumping out of a plane last weekend! 

I’m also open to and need change in my life, especially when it's positive. I love to travel and meet new people and try new experiences - even when the results aren't always fantastical. 
Because knowing what doesn't work in our lives and our lives with diabetes is just as important as figuring out what does.
Sidebar: I still haven’t attempted the boob infusion site and I’m not sure if I ever will, but I haven’t completely ruled it out either. So there's that~

So why what’s the purpose of this post: There are several. 
First: I recently tried something completely different re: bolusing for breakfast and it’s working for me! 
So much so that I’m blogging about it. 
Now, everybody is different  (your diabetes may vary, ;) but my new breakfast bolus regiment is working for me. The past couple weeks I've started blousing for my coffee first and bolusing for the carbs in my breakfast smoothie 30 minutes later. 
I get up, check my blood sugar, bolus for (18 carbs - I like my coffee with cream and sugar) and make my coffee. I gulp down the first mug in 4 minutes flat, prepare the second, hit in the shower and get dressed. 
This all takes about 30 minutes.
Then I bolus for my breakfast smoothie (anywhere between 18 & 22 carbs, depending on the ingredients) and make/drink it. I’ve found that by bolusing separately for each, my post breakfast/mid morning blood sugars are much better. 
They’re not always perfect, but for the most part, my mid morning blood sugars stay well within range and that really makes me happy because for the longest time, my midmorning blood sugars have flipped their bitchwitch in both directions.  
Of course now that I’ve shared, Murphy's Law, D style might indeed decide to throw a wrench in my new breakfast bolus routine, but I can handle it and I will figure it out. Because life with D MAKES us figure “it” out.  

Secondly, but no less important: I want to learn and become inspired by other peoples experiences about trying new things when it comes to their (YOUR) diabetes management. 

So if you’ve tried anything new when it comes to dealing with your diabetes, feel free to share and regardless of the results - because either way, we'll all learn from what you have to say  be inspired by your brave attempt~

Wednesday, October 8, 2014

Diabetes Memory #78,290: Food Prep FlashBacks

I grew up at the tail end of the Diabetes Dark Ages. Only a few types of insulin were available then, we tested urine instead of blood sugars and there were no such things as CGMs or insulin pumps. My parents had 3 children out of 6 with type 1 and my dad had t1. Things were hectic and crazy and it wasn't calm or easy. 
I’ve written about it before but honestly I don’t know how the hell they survived diabetes sans support - but they did - And I am so grateful.  
It’s funny that food prep can bring back childhood memories of life with  D, but it totally does and did. The following happened Sunday night. 
######
Mom & I - A  few months before I was dx'd
Sunday night I was prepping food for the week. And by prepping I mean pre-slicing Granny Smith apples, spritzing the slices with juice from a lemon so they wouldn’t brown in the fridge and would be all ready for my Monday morning green smoothie. 
I washed a bunch of baby spinach and spun it dry in my salad spinner and cut up bananas chunks to freeze for the same breakfast smoothie. 
I pre-peeled organic carrots, sliced them and threw them in a glass jar filled with ice water and placed it in the fridge, so they were good ready whenever I wanted to snack on something crunchy and low carb. 
My prep time was quick and just as I was finishing up the carrots, I had a flashback of my childhood  - to my mom standing at the sink peeling carrots and placing them in a glass jar filled with ice water in the fridge - Something she did daily and long before I was diagnosed. Followed by a memory of her washing grapes and strawberries, drying them completely,  then counting out exactly 12 grapes, wrapping them in saran-wrap for my school snack bag. 
Next she' measuring 1 cup of strawberries, slice them in half and place them in a small Tupperware container and put  it in my lunch box.
Mom tried so hard to make things as normal as possible for me/us when it came to eating. 
As a family, we only dined on small baked potatoes instead of big ones at dinner, there were always lots of raw veggies because I liked raw veggies better than cooked veggies - Still do to this day.  And always sugar free chocolate pudding for dessert. 
FTR: I don’t dig sugar free anything, except for sugar free chocolate pudding.
Yep, my mom did her absolute best and I wasn’t always grateful - I fought the grapes and refused to eat them  a lot of times because “who the hell only eats 12 grapes?” 
I preferred strawberries and apples because I felt like I was getting more bang for my diabetes buck - they weren’t free foods, but they sure felt like it sometimes.
Looking back, she let me go to sleepovers because she knew it was important to be with my friends. I’m sure there were phone calls made between the sleepover parents and mine and I have no doubt that my sugars were on the high side the next day, but I don’t remember. I just remember the sleeping over, staying up and having fun, parts. 
I took tap dancing on Saturday mornings and did gymnastics 3 days a week. 
I always carried my snack with me and mom waited with the rest of the moms in the waiting room until the end of class, when we performed for our parents. 
I always ate a big snack class before class and if I needed to eat during, I ate. 
My parents made sure my teachers knew and nobody ever made a big deal of it - except for my 5th grade teacher - but that’s for another post. 

And as I stood at the sink thinking about all those things my eyes started to get all leaky. 

I was a lucky duck to have her as my mom and I know it!
And I miss her so much.

Thursday, June 19, 2014

#tbt: Dear Children & Teens With Diabetes

Today's #tbt post was written back on October 13th, 2009 and I thought about it today for several reasons:
1. Children and teens with diabetes are down right amazing, as are their parents
2.The Children With Diabetes Friends For Life Conference in Orlando is less than 2 weeks and I can't wait! 
3. Sometimes, regardless of whether we are a child, teen or adult with diabetes - or a parent of one and or all of the above, we need to be reminded how wonderful and magnificent we truly are~
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Dear Children and Teens with Diabetes:
I know you're smart and a digital native, and I know you know almost everything, but please hear me out.
I’m an adult (which freaks me out to write, let alone say) with t1 diabetes and I was once in your shoes.
Being a child with diabetes has its challenges, and some days it sucks- I get that - And I’ve experienced those days -still do in fact.
Diabetes is a lot to handle for an adult, not to mention a kid or a teen, but you're doing a great job!
I know that shots can be scary, annoying and painful, and I know that pumps have their own set of challenges, like infusion site changes, doorknobs and deadspots.
Your bravery is AWESOME.
I know you want to be like your friends, and eat whatever and whenever you want.
And that’s not always possible when your blood sugar is high or the food isn’t gluten free.
I know testing your blood makes the tips of your fingers sore and freckly, and the more tests you take, the more rough and callused your fingers become.
Diabetes doesn’t change the fact that you’re a kid, you just
come with a different set of instructions than most of your friends.
Fitting in, regardless of the age or circumstances, can be challenging at times. 
All of us- Diabetes or not, have qualities that make us stand out.
Embrace what makes you special and run with it!
You’ll be surprised how others will follow your lead.
And the ones who don’t respect you and your diabetes- have other issues (most likely at home,) that don’t involve you and D at all. Trust me on this fact!
Ignore what they say and focus on your real friends.
Diabetes will help you in other ways you never imagined or even thought possible.
Your diabetes will help you see who your real friends are.
Diabetes will help you see who your real friends are not.
Diabetes will allow you to develop something called empathy.
Now keep in mind, almost every one has empathy- or the ability to put themselves in other peoples shoes- but not everyone pays attention to their empathy gene.
Without a developed sense of empathy- humans become selfish and uncaring towards others thoughts and feelings. That will never happen to you.
Diabetes has given you a unique perspective at quite a young age. You know what it’s like to have a bad Diabetes day because of high or low numbers.
You, as a person with Diabetes have the second sight to see when others struggle, and know how to be a good friend to anyone who needs one. Seriously- that’s a cool gift!
Diabetes will allow you to recognize when your high or low – sometimes-even before you test.
Teenagers, this part of the letter is directed mainly at you.
Look, I know that you know everything- I do - I KNOW THAT.
But please give your parents some street cred when it comes to your Diabetes care.
If you want more independence regarding your Diabetes (which I think you should have- to a point) show your folks that your actually capable of taking care of yourself & diabetes.
Your diabetes isn’t going anywhere whether you choose to work with it or against it.
So TAKE OWNERSHIP of your Diabetes. Show your parents that your serious about managing your Diabetes and work with them.
Do this by testing your blood sugars 9 to 15 times a day, (OK, try shooting for 8 times a day)  and write them down in a log book. OK, I'm terrible at that, how about looking into a phone app for logging blood sugars - Heck, you're on your phone all the time anyway so why not? 
 Keep in mind that testing 8 times a day only turns out to be 40 seconds a day, 9 times a day is 45 seconds a day and 15 times a day is only 75 seconds. 
I KNOW you have an extra 40 to 75 seconds a day between texting, wii, texting,school, texting, work, texting, Starbucks, and texting.
Back in the Diabetes Darkages, when I started testing my bloodsugars, my parents wanted me to lug THIS around in my knapsack-

And this is the box it came it!
And it took 2 minutes to tell me what my blood sugar was.
THINGS ARE SO MUCH EASIER IN SOME WAYS TODAY!
Back in the day, there was no such thing as counting carbs and ALL the "good" foods were off limits.
So take advantage of the fact that carb counting is key and nothing is off limits and bolus correctly (give your best shot and if you're wrong, that's what a correction bolus is for) for carbs.
And then test your glucose later to see if you reached Blood Sugar Nirvana.
Carry food with you- ALWAYS. It’s your responsibility- no one else’s.
Also: I know for fact that Glucose Tabs and fruit rollups can be discreetly carried- even in the tightest of jeans.
Take a moment and dust off your empathy tool (which tends to get rusty during the teen years,) and put yourself in your parents shoes every now and then.
I don’t know if you're aware of this, but when you were diagnosed, not only was your world turned upside down, but so was your parents.
And if you were diagnosed as a child- they’ve spent years working 24X7 to make sure you're healthy - Living with diabetes is hard for them, too. 
And I totally get and can relate to wanting more Diabetes freedom- And freedom in general, so show them that you have a handle on you deserve it!
Here's the thing: Parents will always be PARENTS- there's no changing that. They will worry about you even when you're well over 30 and working a real job and living on your own- And you will miss them terribly when they are no longer here to worry about you. Trust me, I know what I'm talking about.
One more thing, THANK your parents every now and then for all they’ve done (and vice versa parents,) because someday,when you're healthy, living on your own and living the life you want, you’ll realize everything they’ve done was because they LOVE you.
Later~
Kelly Kunik

Thursday, June 12, 2014

#tbt Diabetes Style: Multi Purpose Tongs That Boiled Needles, Flipped Bacon & Caused My Dad To Break Into O' Sole Mio"

My mom and or my dad would stand over a little tan pot with a dark brown handle filled with boiling water, one eye on the clock  & with these tongs in hand. 
My folks were still in the habit of sterilizing needles, even though by the time I was diagnosed disposable needles had hit the market and were the norm. A throwback practice from the days when they only had two children with diabetes instead of three and needles were made of glass and sharpened with a stone slate .
And in some weird way I think they found the ritual comforting.
These were the very same tongs that after being washed, worked their magic flipping bacon for 6 children and two adults.
God, it's funny what you remember about growing up - And growing up with diabetes. 

Today, these ancient tongs are still used every now and then - Like when my “real tongs” broke and lost their springiness while I was right in the middle of a veggie stir fry extravaganza. And they can still flip bacon like a badass and with chef like precision.  
Mostly though, I keep them around for what and who they remind me of. 
Also: These well worn tongs were the subject matter of a post from January of 2012 - Which I've reposted below in honor of #tbt - And the people who they remind me of every single time I look at them~
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Diabetes Memories: Boil, Boil, Toil & Trouble - Of Boiled Insulin Needles & Other Diabetes Givens Growing Up~


With three people with diabetes growing up in the house, (four if you count my oldest sister who got married when I was 4) things got pretty crazy, not to mention expensive.
And there were certain diabetes givens in the Kunik household
Like my dad kept his insulin in the butter compartment in the fridge in the utility room, while my sister and I kept our insulin in the fridge in the kitchen.
My dad used Lente as his long acting insulin and I used NPH - And I think my sister did too.
I remember my dad, Debbie and I always busting out needles before we ate our meals, right there at the table - no matter who was at the table. That was our diabetes reality and if you ate at the Kunik table, you were bound to see some hypodermics being injected before the main course.
I remember glasses of orange juice measured out perfectly to treat a lows and the the anxiousness in which we drank down that orange juice.
I remember Tab and Fresca and Diet Pineapple Fanta and diet Orange Shasta always being on hand - Same goes for Diet Pepsi.
I remember that when I was first diagnosed, I used Sweet N Low in my cereal, while my father used something called Sweeta - A liquid sweetner that I thought was heinous.
And those are just a few of the many diabetes memories that enter my clogged mind on a daily basis!

I also have these very vivid memories of my father (and my mother for that matter,) boiling our insulin needles over the stove in a tiny little tan pot with a brown handle - which is something they started doing way before I came to be.
Because back in the Diabetes Dark Ages, needles were made of glass and required boiling and sterilization before each use. So my parents spent of time pre Kelly boiling needles over the kitchen stove.
By the time I was diagnosed, needles were disposable and came in boxes filled with at least a hundred. But my dad still boiled mine to make them last longer, which taught me a few diabetes lessons early on. Lessons like:
  1. The numbers and lines on the needle started to become faint and difficult to read after it’s been boiled a few times
  2. Much like “blunt lancets,” the more you use a needle (after you boil it, of course) the more blunt it gets!
My eight year old self would have major arguments with parents regarding boiled needles and how much they sucked.
And I remember my dad talking about the cost and then singing an intangible and entirely made up english version of O' Sole Mio in a mock yiddish accent while boiling the needles and waving the tongs around to make me laugh and get me off the subject.

Looking back now, I realize how much they had on their plate - And I’m still amazed at how they did it all.
And I’m reminded how far diabetes care has come - And how O' Sole Mio no longer applies~

Do you have any diabetes memories from growing up with diabetes?

Saturday, May 17, 2014

Diabetes Blog Week Day 6: Saturday Snapshots~

Day 6 of Diabetes Blog Week is all about diabetes in pictures. The following pictures reinforce that diabetes is continual, challenging & never-ending balancing act in all dimensions - And even as our diabetes weapons become more technologically advanced.Click HERE for more #dblogweek Saturday Snapshots~
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When I snapped this pic it immediately reminded me of what life with diabetes looks like, 24 X7. Not because PWDs go around balancing swords on our heads - Thank God! But because life with diabetes is a constant and often precarious, balancing act in all dimensions. 
And even though we've come left the Diabetes Dark Ages re: advancements in diabetes technology & research, the challenges never cease & we still have a long way to go!

Tuesday, April 8, 2014

In Life With Diabetes, Small Medical Advances Aren't Small At All - Nor Are They Gadgets~

Gadget: A mechanical contrivance or device; any ingenious article
1. A small mechanical  device or appliance 
2. Any object that is interesting for its ingenuity or novelty rather than for its practical use.
Synonyms: Contraption, whatsis, dohickey, thingamajig dictionary.com
Insulin pump: A pump for delivering insulin in order to achieve tight blood sugar control and lifestyle flexibility while minimizing the effects of low blood sugar (hypoglycemia). The pump is composed of a pump reservoir similar to that of an insulin cartridge, a battery-operated pump, and a computer chip that allows the user to control the exact amount of insulin being delivered. The pump is attached to a thin plastic tube (an infusion set) that has a soft cannula (or needle) at the end through which insulin passes. This cannula is inserted under the skin, usually on the abdomen. The cannula is changed every 2 days. The tubing can be disconnected from the pump while showering or swimming. The pump is used for continuous insulin delivery, 24 hours a day. The amount of insulin is programmed and is administered at a constant rate (basal rate). Often, the amount of insulin needed over the course of 24 hours varies depending on factors like exercise, activity level, and sleep. The insulin pump allows for the user to program many different basal rates to allow for this variation in lifestyle. In addition, the user can program the pump to deliver a "bolus" during meals to cover the excess demands of carbohydrate ingestion. The pump is currently the closest device on the market to an artificial pancreas.”  medterms.com

YEP, nothing novel about an insulin pump - especially if you're the person who's attached to it. And the same can be said for Continuous Glucose Monitors and the accuracy of glucose meters and test strips. 
######
Dear Elisabeth - 
I read your article in the New York Times, "Even Small Medical Advances Can Mean A Big Jump In Bills.  I’ve marinated on it for a few days and honestly, I’ve struggled with my response.  
I agree that the cost of diabetes and diabetes technologies is high (and has always been in the 36 years that I've lived with t1 diabetes,) and I'm well aware that diabetes is BIG BUSINESS. 
I find the cost of diabetes to be incredibly expensive - even with insurance - And I worry about my financial future. 
I worry about everyone living with diabetes having to deal with the same issues and concerns that I do. The financials keep me up at night. And I believe that things need to change regarding the cost of living with diabetes. 
I hesitate to start the paperwork on a new pump or CGM (Continuous Glucose Monitoring system) with my insurance company because of all the work it requires - And I'm worried about the out of pocket expense.  

BUT, as someone who hasn’t had a day off from her type 1 diabetes in 13,230 days and who knew many of the casualties of the Diabetes Dark Ages by name and personally, I'm here to tell you that my quality of my health and the quality of my life has improved greatly over the years since the advent of diabetes technology. 
And I know that my future good health depends on diabetes technology, highly engineered insulin and anything else that:
  1. Keeps me alive
  2. Reduces the risk or helps to limit future diabetes complications
  3. Gives me a better quality of life with diabetes.
In your article you stated: That captive audience of Type 1 diabetics has spawned lines of high-priced gadgets and disposable accouterments, borrowing business models from technology companies like Apple: Each pump and monitor requires the separate purchase of an array of items that are often brand and model specific. 

I found that statement to be callous and sensationalized and a huge over simplification of the many benefits of diabetes technology - Actually, you glossed over the benefits, BIG TIME.  
But I did and do relate to the frustrations re: to the integration and purchase of diabetes weapons. 

Still, make no mistake - Glucose meters, test-strips, Insulin Pumps, CGMs, fast acting insulin, etc., are weapons when it comes to living with diabetes - crucial ones that help us navigate the ever changing terrain of the diabetes battlefield. Without them, we'd lose the D war. 


Elisabeth - Your article made it seem as if people with diabetes didn't need or benefit from D technology  - And that's not true. 
Here’s the thing: Unlike many chronic illnesses, a large portion (8,757 hours  a year - give or take a few hours) of my type 1 diabetes care is in MY HANDS. 
So yes Elisabeth, people with diabetes absolutely need all the help we can get! 
And people with diabetes need glucose meters that provide us with graphs that chat with both our insulin pumps and our CGMs - Glucose meters and test strips that are accurate in order to properly calculate insulin via pumps, shots or CGMs and we and require fast acting insulin that quickly correct elevated blood sugar and allow us to eat when a meal is ready, instead of 20 to 30 minutes after taking it. 
And those people with vision issues because of diabetes need and require glucose meters with an audible voice. 

Personally, I would NEVER entrust my life, my health or my future health to mere gadgets Sidebar: Please refer to opening paragraph for the definition of the word gadget. 

Life and life with diabetes is far to complicated for novel gadgetry. 
Nobody living with diabetes and regardless of the type would rely on simple gadgets - But it would be great if we could. 
For those of us who remember The Diabetes Dark Ages, the time before insulin pumps; CGMs and glucose meters, life with diabetes had less precision, less flexibility and was more complicated - And led to more diabetes complications. 
We tested urine instead of blood,(disgusting and far from accurate,) had only a few types of insulin to choose from. And as far as the diabetes diet back then, it was anything but flexible. 
God, we would have given anything to have diabetes technology and fast acting insulin available to us! 
Technology like insulin pumps that allow for the customization of insulin delivery and more glucose meters/test strips and Continuous Glucose Monitoring systems and the advent of  analogue insulin .
The creation and availability of analogue insulin changed our lives for the better and allowed better glucose control, i.e.,blood sugars and meal time flexibility
All, key weapons for those of us doing battle with diabetes on a daily; yearly, weekly and decades, basis.

In the 1980’s, when my family and I received our first glucose meter - which cost hundreds of dollars; wasn't covered by insurance and was shared by the whole family shared, my parents, (my dad had t1) sister, (also a t1) and I had to meet with our pharmacist to learn how to operate the meter. 
The meter was the size of a VHS tape, took 3 minutes to calibrate and had a 44 page instruction book. There was nothing portable or convenient about it - And it was far from accurate - But it was more accurate than urine testing - And we were grateful for it.
A few years after we purchased our first meter, I lost 2 of my aunts to type 1 diabetes- they were in their early 50's. 

And I believe that if my older sister Debbie had diabetes technology available to her when she was diagnosed as a child( in the late 60’s,) or even as a teen, she wouldn’t have died from diabetes complications. Complications including; heart attacks, gastroparisis, multiple strokes and kidney failure, 22 years ago at the age of 34. 

I miss my big sister and I think about her every day - And I wish that she would have had the diabetes technology that I have available at my finger tips today - And clipped to my hip since 2002. 
And I will continue to advocate for people living with diabetes - And I'll fight tooth and nail to make sure that we've left the Diabetes Dark Ages forever. 
Sincerely, 
Kelly Kunik
t1 Person with diabetes for 36 years.
Diabetesaliciousness.blogspot.com
@diabetesalish