Monday, January 30, 2012
TSA As A Diabetes Brain Trust? I THINK NOT!
Friday, January 27, 2012
Diabetes Doesn't Respect A Woman's Right To Change Her Mind.....
I stand by those words 100% and I utter them often- though the Baked Lays part is interchangeable with various carbs, like past, rice, Chinese & Mexican cuisine.
Diabetes doesn't respect or get the fact that I (and by I, I mean we) like cute boots and wedge heels - And I wear them.
And while I'm ranting, I'm going to say that shoe designers don't get (or won't admit too) the fact that just because you have a wide foot in the toe-box area, doesn't mean you want to wear some God awful, ugly ass shoes.
Diabetes doesn't get that some days I want to wear not so sensible shoes for more than a few hours at a time - it's not my fault I have high arches!
And you know what? I don't want to look like I have three boobs, specifically when I'm attempting to tuck my trusty insulin pump in my bra and thanks to my less than ample boobs, it never seems to look quite 'natural," when stashed there.
In my mind, I hear diabetes (like it was an actual person) say: Tough crap, Kel - DEAL WITH IT. And I DO.
And other times, like my friend Kim - I bolus before I eat, and then realize I've changed my mind.
Thursday, January 26, 2012
"Dog Pile On The Diabetes, Dog Pile On The Diabetes!!!"
Wednesday, January 25, 2012
Tuesday, January 24, 2012
Diabetes Memories: Boil, Boil, Toil & Trouble - Of Boiled Insulin Needles & Other Diabetes Givens Growing Up~
- The numbers and lines on the needle started to become faint and difficult to read after it’s been boiled a few times
- Much like “blunt lancets,” the more you use a needle (after you boil it, of course) the more blunt it gets!
Monday, January 23, 2012
Diabetes Skycam On A String
Maybe if I had a camera on a string hovering over me like the NFLers do, I could capture and replay all those little moments (and rare) that led me to my diabetes victories, both big and small.
You know, like when I get a carb count right for an insanely filled carb meal or when I cut my temporary basal rate pre workout whilst figuring out and ingesting the perfect snack for said pre-work out activity (because every workout activity requires a different snack and temporary basal rate) so I don't have to stop mid-workout to fuel up. And I'd really appreciate the diabetes camera on a string zipping around on a day when my numbers seem to achieve Blood Sugar Nirvana without much effort and I'm not really sure why.
It's not that I don't remember what I did, because I do.... to a degree.
But it's those little nuances (portion size or food combos; wholegrain verses non whole grain, infusion set location/ deadspot issues, stress factors, mental status, time of the month - ladies, you know what I'm talking about, activity level(s) or the moon' s gravitational pull for that matter,) that seem to make the difference - And I don't always remember them... or the order in which the occur.
Same goes for when my numbers are all screwy for no real reason except because diabetes feels like being bitchy - which happens a lot more than I'd like to admit.
On the other hand, the more I think about having a diabetes Skycam zipping around my world on a string, the more I think it wouldn't work. First, it would be super expensive, not to mention inconvenient and bulky. And second, Diabetes Skycam on a string would only capture my diabetes movements from exterior angles, not interior ones.
It wouldn't capture my diabetes inner workings or my brains for that matter- And as we know - that's a pretty big part of diabetes. Not to mention the fact that it's completely unrealistic - but a hell of a visual!
Plus, I'd have to hire an announcer for the they diabetes instant replays - And again, that would be ridiculous expensive, incredibly annoying - not to mention creepy~
Saturday, January 21, 2012
Debbie - 21 Years Goes By Like THAT.
Thursday, January 19, 2012
My Take on MTV's True Life: "I Have Diabetes," Episode
Last night Mtv aired it’s True Life: I Have Diabetes, episode.
And I have to admit, I was ready to go in there swinging and with fists in the air for what I was prepared to view. I was ready for it to be dramatical, sensationalized and completely off base - And for the most part - I was wrong.
As I watched, I found myself wanting to jump through the television screen and wrap my arms around the three young people featured with diabetes. I wanted to protect them fiercely and bring into the Diabetes On-Line Community’s embrace!
And I wanted to smack some of the non PWDs (People With Diabetes) in the episode (and a few in the editing room) for many reasons - Including their lack of compassion.
During the episode, those of us watching in the Diabetes On-line community who were on the twitter were continually telling the @MTV folks to get us in touch with the PWDs featured on the episode!
Facebook status updates, (including my own) were filled with peoples thoughts and concerns! Conversations were generated and are still generated about the episode!
In the episode we were introduced to Kristyn, a 20 something type 1 who had close to $9000 worth of credit card debt - Almost all of it diabetes related.
She was working two jobs and moving back home in order to get her finances in order. Her insulin pump was on its last legs and she needed a new one - like yesterday!
Her mother made her sign a contract that covered everything from a clean neat room, to doing dishes, to keeping good glucose levels and giving up all fast-food and soft drinks.
I found her mother to be incredibly tough and judgmental at times and I think her behavior was a perfect example of how you can care and love someone, but sometimes it comes off as judging.
Her daughter was working two jobs (and literally around the clock,) to get out of debt and get a new pump (which would cost her $2200 out of pocket )and which she put on her credit card because out of necessity, and her mother was grilling her about EVERYTHING, including drinking diet soda? REALLY?
At one point Kristyn cried: I just wish she’d acknowledge when I make a little of progress!
And at that very moment all of us watching and tweeting about the episode felt the very same thing!!!
I was so proud of Kristyn for working so hard at her life & her diabetes - And I didn’t even know her! And quite frankly, I didn’t understand how her mother couldn’t be proud - Or at least not verbalize her pride.
It is so easy to tell some one what they should be doing with their life, and their life with diabetes. And sometimes we forget that a little acknowledgement and praise goes a hell of a long way!!
In the end, Kristyn got a new pump, and to paraphrase her own words: Decided to use her mother’s negativity and turn it into a positive - to get her out of debt.
The last shot of them together shows them working as team on a spread sheet re: Kristyn’s finances - And it looks as if their relationship had turned a really positive corner - And that makes me both relieved and happy for them both!
And then we had the opportunity to meet a college student named Matt, a type 1 since the age of 13.
By Matt’s own admission, back when he was first diagnosed, he was “the perfect diabetic” and had great numbers and control.
But since Matt entered college, not so much. His focus is on partying and having the same college experience he thought all his friends were having. And as person with type 1 who had diabetes in college - I get that, I do.
I think all of us who had no choice but to take our diabetes to college with us, had our moments of being Matt - though perhaps not to the degree he took it - At least according the the show’s editing of his drinking.
College equals freedom for many and diabetes is a constant - Matt knew it and so I - but in college, my diabetes wasn’t a priority. Its so hard to embrace your own normal in life, not to mention college, because you want to fit in and be like everyone else!
And let's face it, Diabetes Burnout happens regardless of your age!
Matt’s friends were certainly concerned and aware of Matt’s health issues. He’d had three diabetes related seiszures since going off to college - And that not only worried his friends and family, it worried all of us watching!
His friends checked in on him when they were out and it was obvious how much they cared for him. When his bg was 405 and he was getting sick, they were really there for him.
Matt’s a1c was 8.4 and I have to say - I appreciated Matt’s Endo and his listening abilities. He didn't start off by judging him, which allowed for an open dialogue between the two of them - and Matt actually going to see his endo. At least that's my opion.
At one point Matt utters: Would I rather my disease be better or my life be better?
And he chose his life. FYI: I'm not sure if this was a direct response to a Producer's question or something that he said off the cuff and entirely on his own.
Anyway, I wanted to tell him that 30 comes around the corner so quickly, (not to mention other numbers,) and that having good diabetes control does equal a good life. The two can go hand-in-hand and one does not have to exist without the other. Actually, one will exist because of the other.
But that’s a reality that the person with diabetes has to realize and come to terms with on their own.
In the end, we see Matt drinking Crystal Lite at his 21st birthday party and trying to get his numbers in check before he drinks. He promises to cut back on his drinking and focus more on his health.
Next we meet Jen, a 19 year old woman who is 5 months pregnant and had been diagnosed with type 2 diabetes at the same time she was diagnosed with being pregnant.
Personally, I thought the type 2 dx was more than a bit off! She was slender and I was thinking more along the lines of, type 1, LADA or gestational diabetes. It's a real shame her healthcare team didn't consider those types of diabetes.
The nurses continually used the possibility of using insulin as a scare tactic, and that really pissed me off! Obviously oral meds weren’t working and so many women w/gestational diabetes go on insulin to protect both the baby and themselves.
Jen was trying - but I really feel that she was lacking proper information and I was disappointed in her healthcare team.
She ended up going on insulin, having the baby induced early. Her son was whisked off to the NickU and suffered a "broad shouldered baby injury," a.k.a, Shoulder Dystocia. I'd never heard of it before or it’s direct link to diabetes and pregnancy before, so I was glad I learned something new
What really broke my heart was that Jen was obviously misdiagnosed. After she was able to bring her son home from the hospital, Jen was hospitalized 5 more times with high blood sugar and was re-diagnosed as a type 1. And MTV's explanation as to how and why that occurred was way off and the fact that she was misdiagnosed wasn't even brought up!
Because of her misdiagnoses, both Jen and her baby suffered tremendously and that pisses me off. Had no one in her healthcare professional circle ever heard of young adults being diagnosed with type 1 Or LADA for that matter?
For the most part, MTV did a good job, though I would have really appreciated a producer who had done their home work on type 1, type 1.5 and type 2. Which would have made their conclusion of Jen’s rediagnoses much easier to understand from a non-diabetes point of view.
Still, I was pleased with the episode as whole... FOR THE MOST PART. It showed very real issues associated with living and growing up with diabetes, but were there some things they could have done better?? ABSOLUTELY. Was "creative" editing an issue?? MAYBE.
UPDATE: MTV has updates on Kristyn, Matt & Jen and their lives since they filmed the episode! Click: http://remotecontrol.mtv.com/2012/01/18/true-life-check-in-matts-cut-back-on-his-drinking/#more-108653
Now, if @Mtv could just get those featured in the episode (and those not, but living with diabetes) introduced to the diabetes on-line community!
Speaking of, other great DOC posts regarding the episode can be found at:
http://countrygirldiabetic.blogspot.com/2012/01/mtv-true-life-i-have-diabetes.html
http://www.textingmypancreas.com/2012/01/mtv-true-life-i-have-diabetes.html
And if I've missed your post - Add it to the comments section so we can check it out!!
Wednesday, January 18, 2012
In Protest
Monday, January 16, 2012
Paula Deen - If You Need Us, The Diabetes On-Line Community Has Your Back!
So there was all sorts of rumblings (and twitterings) on the internetz this past weekend about the possibility of Paula Deen being diagnosed with Type 2 Diabetes. Paula's people have yet to confirm the story and until they do, I won't say that Paula is a person living with diabetes, because I don't know.
And it pissed me off!
Here's the thing. I don't like it when somebody blames me for my type 1 diabetes - As a matter of fact, It makes me pretty damn mad! And I don't like it when somebody blames you for your diabetes - regardless of the type! That also makes me pretty damn mad because it's wrong on so many levels. NEWS FLASH: Diabetes diagnoses aren't all about the cooking!!!
And to say that somebody deserves type 2 diabetes because of that person's love and use of butter is asinine. Seriously, if that were true, than the whole country of France would have type 2 diabetes, and according to the research I've found, 3.8 % of France lives with type 2 diabetes, not 100%.
I like Paula's cooking enough to say out loud "Wow, that looks good," when I happen to catch her show on TV.
I can't say it's exactly my style - But I wasn't raised down south. But I can't say that I would turn down a meal at one of her many restaurants, because I wouldn't.
I respect Paula as a human, a television Chef/ Personality and a business woman who over came tremendous odds including debilitating agoraphobia to get where she is, and if she confirms that she has type 2 diabetes, then I will respect her as a person living with diabetes.
Others are blaming her for possibly considering a deal with Novartis and question the fact that she might actually make money of her presumed diabetes.
If Paula comes out as a person living with type 2 diabetes, I won't blame her, but I will welcome her into the diabetes on-line community with open arms!
Type 2 has a huge genetic link, and while diet certainly can be a factor in developing type 2, diet isn't not the be all end all reason for type 2 diabetes. And if that's the reason why you or your loved one has diabetes - That's OK, because I'm here to help you, not judge you.
To blame someone for their diabetes not only prevents that person from seeking help with their diabetes (it's called a stigma people,) & actually perpetuates diabetes myths!
Blaming people for their diabetes also directly affects fundraising dollars for a diabetes cure. If the public perceives diabetes and all its forms as preventable, who will donate to raise funds for a cure?
The diabetes reality is that nobody, regardless of which type of diabetes they live with ( type 1, type 1.5, type 2, gestational, or type 3) wants to live with diabetes. Diabetes isn't a choice for the majority, it is a very real genetic reality. Just like having blue eyes.
I think it's our job FOR ALL OF US in the diabetes online community to show the public the real faces and realities of living with diabetes - regardless of the type.
It is our job to call out the media out when we see a diabetes media muck-up and it's our job to show the world that living with diabetes isn't a choice or a character flaw. It is a 24X7 reality that we never get a break from.
And it is our job as people living with diabetes to help (and be helped) by others living with diabetes, while educating others in the process.
After all, we are all in this together........ and there but for the grace of diabetes go I~
Friday, January 13, 2012
ONCE Makes Me Happy
Thursday, January 12, 2012
In This Chapter: It Was A Dark & Stormy Night & Our Heroine Was Just About To Hit The Sack......
Wednesday, January 11, 2012
32,865 Days Ago A Miracle Happened On Bloor Street ~
Tuesday, January 10, 2012
Life With Diabetes: The Quest For Pancreas Perfection & Achieving Blood Sugar Nirvana
Iheartguts makes an honest to goodness "perfect pancreas, " and it only costs $16 bucks!
So in the Diabetes On-line community we are all working pancreases both by day, and by night - Continually on the quest for pancreas perfection and achieving Blood Sugar Nirvana.
We are litigious calculating carbs, experimenting with temporary basal rates, trying out carb combinations in all their many shapes in forms and every thing else diabetically speaking in between. We all try so hard to be the perfect definition of a what a working pancreas is. And lets face it, our health depends on our hard work and we are constantly reminded of that at every diabetes twist and turn.
And we are much harder on our ‘Working Pancreas” alter egos than we are on ourselves. I'd I'll be the first to admit, I’ve said the following, and much, much more:
Oh, Kelly you stupid pancreas, how could you not realize that forgetting to bolus for that third cup of coffee would create havoc with your numbers?
Nice job being Kelly’s pancreas, Kelly. Seriously, how could you let yourself go so low?
Really Kelly’s pancreas, REALLY. How the hell could you forget extra batteries for your pump professional - REAL PROFESSIONAL.
YES, I sound like Sybil - But at least I’m not alone!
And I know myself well enough to realize that I will continue to have these Sybil like conversations with myself.
And I'm smart enough to believe it's OK to vent - I'M ALL ABOUT VENTING.
And I'm damn glad I have people to vent with, who understand what I'm going through because they've gone through it themselves.
BUT As people LIVING with busted pancreases, we are critical of ourselves, as are parents working as full time pancreases for their children.
And sometimes (at least as far as my own quest for pancreas perfection and achieving Blood Sugar Nirvana is concerned,)
I can be so focused on the goal of perfection, that I (we) forget to remember all the lessons continually being learned on the road to perfection.
And I’ve come to realize as of late that nothing is perfect - in life or diabetes.
And if we stop learning, we stop appreciating all the knowledge that we’ve gained. And then we become stuck... and who the hell wants to be stuck - be it in dog shit or life?
Being stuck in life means that you don’t have the chance to move forward.
So I guess what trying to say is: LIVE AND LEARN, get unstuck and appreciate all those lessons you're learning.
And remember to give yourself some much needed credit for the difficult job that your doing 24X7 & 365 days a year - Because you deserve it~