Monday, October 31, 2011

34 Years Of Living A Diabetes Life - Happy Diaversary To Me!

Today is Halloween and it's also my 34th Diaversary, and I'm celebrating 34 years of living a diabetes life!

Regardless of any bumps in the road ( diabetes and otherwise,) I'm happy to be alive and thriving and I have SO MUCH to be grateful for.
So once again, I've made a list of the first 34 things I'm grateful that come to mind ~

Sparkles & Feathers - Even as a 3 year old Trick-Or-Treating!
1. Silver linings
2. Little victories
3.Being alive
4. Living life
5. The ocean two days before a hurricane
6. Hugs & kisses from little ones
7. Doing better than I did before
8. DOC Meet-ups
9. Reese's Peanut Butter Cups
10. Manatees
11. Daffodils in full bloom
12. Fantastical nieces & nephews
13. Laughing so hard that I cease to make audible sounds
14. Cupcakes
15. Letters & emails from those I love
16. Learning new things
17. Appreciating old haunts
18. Memories that make me smile
19. Unexpected signs that let me know that those who are no longer here are still thinking of me
20. Movies that make me laugh and or cry
21. Things that sparkle & shine
22. Peanut Butter & Jam on a spoon
23. Doggies
24. Nutella
25. Old friends
26. New friends
27. Blood Sugar Nirvana
28. Knowing that I will continue to use (and find) my voice
29. Precious cargo
30. Knowing that I am my mother's daughter, inside and out
31. The smell of fresh cut lavender
32. A good book
33. mac as my crack
34. Being blessed to call you my friend.

Next year is my 35th Diaversary, and I plan to celebrate in a MAJOR way - that includes YOU.
Stay tuned for details......

Friday, October 28, 2011

An Ode To The "Diabetic/Dietetic Friendly" Candy of Long Ago.....

Because those of us growing up in the Diabetes Dark Ages "suffered" with Diabetic Friendly/Diatetic Candy - And lived to tell about it!
#####

An Ode To The "Diabetic/Dietetic Friendly" Candy of Long Ago......

Rainbow colored hard candies, sickeningly sweet treats,
Rainbow colored hard candies, that became cemented to our teeth.
Chocolate that tasted like cardboard, with a wicked after taste,

Sitting in a candy bowl by themselves, all ready, willing and able...
"Diabetic Friendly" stamped in ALL CAPS & emblazened on the label.

Of course our well meaning friends and neighbors thought them very safe.
Never once imagining the gastrointestinal explosion that followed in the wicked "Diabetic Friendly" candies wake.
Made with chemically alcohols like sorbital and malitol and others things hard to spell -
Stuff that caused all types of cramps and our bellies to over swell.

Those of us growing up long ago and in the old days way back when,
learned one of the most important diabetes life lessons as fact early on:
No matter how our Trick-or-Treating turned out in the end.....
To steer clear of the nasty & wicked "Diabetic Friendly" candy, because it was clearly NOT our friend.

Thursday, October 27, 2011

My Endo Gets It.

Yesterday was the dreaded Endo appointment - And I knew going in what my lab results were, including the A1c of 7.4 - And I wasn't the happiest of campers.
But sometimes, diabetes or not, life gets in the way. I tried my absolute best during my mom's illness and subsequent death to stay on top of things - At least as far as my diabetes life was concerned.
I tested like a mad woman; ate when needed, and took any and all daily medications required.
I really thought I had a handle on things diabetically speaking. But sometimes it doesn't matter what you do externally, stress still plays a major factor internally speaking - And the proof is in the numbers.

As I walked into my Endo's office, I felt the dread weighing heavily on my heart.
I signed in, was weighed, and read a copy of Philadelphia Magazine while I waited in the examine room.

And then a nice Intern came in and asked me all the typical questions one would expect from an Endo visit. Questions about blood sugars, basal rates, eye-exams and the last time I saw a Podiatrist.
Then he asked if anything out of the ordinary had happened since my last visit....... And I looked him straight in the eyes and told him my mother had died 33 days earlier.

I told him in a matter-of- fact manner about taking her to the emergency room, her blocked kidney & the failed stent attempt. Her being in the intensive care unit; and being in a medically induced coma, and how she beat sepsis and woke up & was moved to a Step-Down unit, and then suffered from internal bleeding because of her cumadin, and how she beat that and was moved to a Telemetry unit. And finally I told him about her coding twice from CO2 build-up and never waking up and having her vent removed.
I told him about the funeral and all that followed, including the sleepless nights. And then I told him that I missed my mother more than I could put into words and how being an orphan absolutely sucked.
And he listened and took notes and then said how sorry he was. He asked me if I was depressed, and I told him that no, I wasn't depressed, but I was sad about losing my mom and that I missed her very much.
And then the intern told me (and I'm paraphrasing here,) that during the Adjustment Phase, (apparently, that's the name for the time after a loved one's death) being sad is normal, and that in his professional opinion I didn't look or sound depressed. I looked good and it sounded like my family and I had been through a lot.
And that quite frankly, he'd be concerned if I wasn't feeling sad. And I was like: Oh, OK, that makes me feel better, thanks. And then he went off to find Dr. J.

And a few minutes later Dr. J came in and told me how sorry he was and asked me to explain what happened with my mom from the beginning - So I did.

Dr. J: Kelly (but when he says it, it sounds like kel-lee,) I am so sorry to hear that!! You have been through so much and under a tremendous amount of stress!! I know it's been difficult and if you need anything, call us.
Me: Thanks.
Dr. J: Listen, your labs are great. Cholosterol, is good, blood pressure good, and kidneys are great! And I gotta tell you Kel-Lee, with all the stress you've been under, I fully expected an A1C in the nines or tens -At least! So listen, we're not going to change your diabetes management right now. Let's see how things are next visit before we consider playing around with your rates.

A 7.4 A.1c is really very good! Don't beat yourself up, Kel-lee.

And then we talked for another 20 minutes or so about life and discussed what direction my life was headed. Then Dr. J ran out and retrieved a large number of insulin samples for me and said: I'll see you in February/March, and call if you need anything!

We said our goodbyes and then I scheduled my next appointment and left. In the elevator I put on my sunglasses, even though it was crappy out, because I had tears in my eyes.

My Endo, his intern, CDE and amazing staff get "it," BIG TIME.
And by "IT" I mean life, and what life throws our way, diabetes and otherwise.

And I feel incredibly lucky & blessed to have such an amazing diabetes team working with me - And I am very thankful indeed~

Monday, October 24, 2011

Diabetes Related OCD & Me

My Diabetes Related OCD is once again rearing it's ugly (though very necessary head,) as I try to organize my things & prepare for some major life changes in the not to distant future.
I've been spending a lot of time as of late cleaning, organizing & pitching things, and in the process have noticed a few things regarding my Diabetes OCD.

1. I have a thing for Ziploc bags
I have a sandwich sized Ziploc bag filled with extra insulin pump tubing, from all the times I ran into a doorknob and or dead spot and had to replace my infusion set before my reservoir set.
I also save those tiny Ziploc bags that lancets come in and use them to cart around spare pump batteries. I also have 1 large size Ziploc bag in 3 different pieces of luggage, each containing a vile of unopened test strips; several infusion/reservoir sets, some spare lancets, and an unopened box of travel size toothpaste.
2. Speaking of lancets.....
I find unused lancets in almost every desk & bureau drawer.
Also, I just changed my lancet this morning - And it feels so much better than the previous burned out/ blunt lancet!
3. Since I mentioned batteries....
I need to invest in a battery tester. WHY? Because as I clean out old handbags I'm finding those tiny zip lock battery filled bags in almost every handbag, and I have no idea if they work or not.
4. Test strips
I know I've written this before, but I love seeing my test strip boxes all lined up by expiration date in my desk drawer - It makes me feel safe, and it makes me smile. ;)
5. Juice boxes
I'm back to buying juice boxes (I prefer Apple & Eve) and keeping a 3 and or 6 pack in my nightstand drawer and one juice box on my nightstand for middle of the night lows.
Personally, I like the Sesame Street Variety Pack, tasty flavors & 14 grams of carbs a serving!
6. Let's revisit the subject of test strips...... Again
I'm finding used test strips in drawers, closets, closet shelves and I even found one in the recyclable container. What the heck!!!

So, do have any Diabetes Related OCD issues that you'd care to share?

Thursday, October 20, 2011

Newest Member Of The D.O.C. ?


Newest Member of The D.O.C.??

Coincidence, fact or potential new plot line?
You be the judge!

Saw this ad at the Doctor's office & laughed out loud, BIG TIME.
I just couldn't resist tearing it out and posting!!!
And seriously, part of me wants to write: GUILTY AS CHARGED.

The Diabetes On-Line Community is EVERYWHERE!

Wednesday, October 19, 2011

I'm Seeing So Much Pink I'm Starting To Feel Like Beebe Gallini!!

PRETTY IN PINK?

RECENT OBSERVATION: As I was running around town doing
errands in my hometown recently, I found myself surrounded by a sea of pink at every turn Pink at the Post office, at the CVS, at the Hallmark, and at the Independently owned Gourmet Grocery Store, where the bag of chips I purchased were pink. And I swear to God, I started to feel like Miss Beebe Gallini!
SIDEBAR: How's that for an obscure TV reference? I got a million of them!!!

I know that October is Breast Cancer Awareness Month, and I'm for all it. I've had friends and family with breast cancer and I've walked their walks and donated in memory of loved ones to find the cure.

With that being said, when October ends and November rolls around around, a.k.a., National Diabetes Awareness Month, I want Diabetes education, awareness and fundraising to cure diabetes to step to the forefront, and I want people to embrace the diabetes blue of it all.

So when I walked into the pink post office and asked the lady behind the desk if the USPO had planned on doing anything for National Diabetes Awareness Month in November.
Postal worker: Not that I'm aware of.
Me: Well you really should, It November is National Diabetes Month and November 14th is International Diabetes Day.
Postal Worker: Well, the main reason we focus so much on breast cancer is that we promote their stamp.
Me: Well, you had a stamp for diabetes awareness as well. I remember it well because my family and I bought a truck load of them.
Postal Worker: Oh.... yeah......we did.

And then I mentioned a multitude of Diabetes Month suggestions including, Blue Circles, blue lights, Blue Fridays and since I was at the United States Post Office, I mentioned The World Diabetes Post Card Exchange.

And then she promptly told me that I was holding up her line.

And then I left and went on to give the same old, same old to the folks at my CVS, and Hallmark, and Gourmet Market, and once again, nobody really seemed to care.

And that just pissed me off!

And once again I realized that because diabetes is invisible for the most part, even to those of us we clip our electronic pancreases on our hips - which 90% of the time has people thinking that it's a beeper, and that those who wear said insulin beeper are some sort of time & space continuum time traveller from 1992!

But, I digress........

A member of our DOC family knows this fact all to well. Barbara Campbell lives with diabetes, and was diagnosed with breast cancer,and she wrote an an amazing and eloquent post about the public disparity, sympathy, understanding and awareness regarding the two diseases, and I strongly suggest you read it. http://babscampbell.wordpress.com/2011/09/16/at-least-its-not-cancer/

So once again, it's up to us, the DOC to spread the word to the public, while at the same time encouraging diabetes organizations to work together to promote National Diabetes Month & International Diabetes Day.

But if anyone can make it happen, the DOC can ~

Tuesday, October 18, 2011

Full Reservoir Syndrome/Euphoria

Whenever I have a brand spanking new reservoir that’s filled to the brim with that life saving elixir called INSULIN, I have this weird sense of normal.

It’s not a bad sense of normal, just a weird sense of normal.

For some reason knowing that for the most part, I don’t have to fiddle with a bottle of insulin for a few days makes me a happy camper. I like to refer to this feeling as: Full Reservoir Syndrome / Euphoria.


Yes, I wear my electric pancreas clipped to my hip, and I’m forever lancing myself to input my numbers to said electric pancreas, but that’s my normal and not actually having a daily interaction with an insulin bottle is a wonderful thing in Kelly’s world.


For the first few days of Full Reservoir Syndrome/Euphoria, I don’t even think about the insulin in my reservoir, (unless the insulin’s gone skunky,) because for the most part, I know (OK, I feel very strongly,) that I’m covered.


Instead, I'm free to worry about blood sugars gone wild, dodging doorknobs, avoiding dead spots, etc., etc., etc.


Currently, I have 5.7 units of short acting insulin left... And since sometime early yesterday evening, the low reservoir alarm has been reminding me that It’s almost time to change out the old for the new.


And for some reason, it makes me sigh a little melancholy sigh.


It’s not that changing the reservoir is a pain, because it's really not. Actually, it’s super quick and easy and takes less two minutes of my time, so why do I become a little bit of “Melancholy baby? ”


Most likely it’s because it reminds me that without a insulin for my reservoir, I’m toast.

And for the record, I already know I'm toast without insulin, full reservoir or not.


So..... Have you ever experienced full Reservoir Syndrome/ Euphoria? Diabetesalicious minds want to know ;)

Friday, October 14, 2011

Thigh Infusion Set Sites & I Have A Love/Hate Relationship ~

I have a love hate relationship with thigh infusion sites and I have absolutely no problem admitting that fact to the masses.
On one hand, I love thigh infusion sites because they give my abdomen a break and helps me to prevent dead spots in the belly and don't really hurt too much to insert - Even on my skinny thighs.
And when I wear a skirt, thigh sites tend to be tangle free ( including the times I don't wear my pump garter) while at the same time keeping my tubing from being clamped between my pump clip or belt while simultaneously camouflaging said tubing and I appreciate that!
On the other hand, those thigh sites don't always work and the tubing almost always gets caught in my pants/jeans and belt. I have to be uber careful when going to the bathroom because I can't tell you how many times I've ripped out said infusion site when I was just about to sit on the porcelain throne.
And for some reason, after only a few days, my thigh site stop working and almost always end up getting all types kinky - And not in a "get your freak on," sense of the term ;)
Any my friend's daughter Cutie Pie, absolutely HATES when I were my infusion set on my thigh, because then she can't see my broken belly. Last night I had dinner with them and she said: Kelly, where's yoour broken belly medicine band-aid thing?
When I told her where it was and let her feel the set through my jeans, she told me: I don't like it there because I can't see it! Kel, take off your pants!
I didn't of course. Have I mentioned that she has a mind like a steel trap and is slightly bossy?
But I digress. Back to the subject of this post. I really appreciate the fact that I'm giving my stomach a much needed break and I'm a woman who loves options both in life, and my diabetes accoutrement's.

So, what are your thoughts/ experiences regarding thigh sites? Do you love them, hate them, or have you never even given them a second thought and yours truly is just being all types of silly?

Wednesday, October 12, 2011

Wordless Wednesday: Finding The Beauty In The Calm

Finding the calm... And the beauty in it~
Photo credit: Kelly Kunik

Sometimes our world gets so incredibly crazy and hectic that we don't stop to appreciate the beauty in the calm.
So find the calm and find the beauty, be it in a person, place or thing.... And take it all in ~

Monday, October 10, 2011

Stress, Me & My A1C.

Stress does a number to our minds, not to mention our bodies - Not to mention our blood sugars and a1cs!
These past 6 weeks have been incredibly stressful and to be quite honest with you, I really thought I had a handle on my blood sugars.
With all that went down in my life since mid August, my numbers weren't bad, as a matter of fact, they were pretty darn good.
I tested like crazy during those weeks and I REALLY thought I was handling all of life's curveballs. Yes, I did have to utilize some increased temporary basal rates due to the two sinus infections I battled. One when my mother first went into the hospital, and a nasty one I woke up with two days after she died.
And I also utilized my decreased temporary basal rate function during my mother's illness because as long as I'm being all honest, my appetite was none existent. It's not that I didn't eat, because I did, I just didn't eat as much as I normally do. Food had lost it's joyful appeal to me and I ate when required/needed, not because I wanted to enjoy in Epicurean delights.
I lost 13 lbs due to stress. And as much as I had wanted to lose 7 or 8 pounds, I'd rather have stayed at my previous weight and still have my mother alive and kicking.
The only day my blood sugars went completely haywire was the day of my mother's funeral. Between a new infusion site on my thigh (which would later proved to be completely and utterly useless because it absorbed absolutely no insulin whatsoever,) and an amazing amount of adrenaline that I was producing, my numbers went up to the high 300s - But as soon as I changed my infusion set (at noon) my bloodsugar was 120 by 4p.m. And after I'd eaten lunch.
My mother died the evening of September 23rd, and I'd gone fpr fasting blood work that morning. I had a scheduled Endo appointment the following week that I ended up canceling because it ended up being the same day as my mothers funeral. Anyway,for some reason I thought that just maybe my a1c would have stayed at the 7.1 it had been previously.... maybe even lower.
But I was wrong. Last week I received my results and my A1c was 7.4
I wasn't thrilled - And I was actually sort of shocked.... but not really. But I was pretty damn annoyed and posted about it on The Facebook.
And I received incredible words of encoragement from the DOC. YOU ROCK!
It could have been worse, and in the grand scheme of life, and life with diabetes, it's not a big deal. Shit happens and I did my best during a an incredibly difficult period of my life. And I'm proud of that 7.4 now, because it could always be worse - And I know that for a fact.
I see my Endo on October 26th (I can't believe I only had to wait 33 days - Thank God for cancellations) and I have a feeling that he's going to understand all the hows and the whys. He always does. Dr J understands that life throws us curveballs, stress does strange things to our numbers and that those of us living with diabetes are more than just our numbers.
We are people who deal with life, while we deal with our diabetes 24X7,365 days a year, with no time off for good behavior.... Or the sudden illness and death of a loved one.

Friday, October 7, 2011

No D Day 2011: Painted Lady Prose

Thanks to the amazing Ninjabetic, No D Day is once again in full force. Today many of the Diabetes bloggers are writing about anything but diabetes!
As for yours truly, I'm writing about Painted Ladies - The fantastical butterflies fly to a warmer climate each and every fall and are literally everywhere I look come late September and early October.
These beautiful Painted Ladies make me smile and they make me happy and I LOVE THEM.
I started taking pictures of them last year and I like what I captured in my lens.
And then the butterflies inspired some prose and I decided to share both with you!

Painted Ladies sitting pretty on daisies

Painted Lady Butterflies sitting on daisies,
Painted Lady Butterflies behaving like.... Well, ladies.

They Flitter around and make me smile,
Flittering by my garden - stopping if only for a while.

It's amazing what these Painted Ladies will let you see...If you sit completely stil and let them be.
I snap their picutes, then sigh and say goodbye.
Knowing it will be anther year before I get another chance to say "Hi."
Travel well my lovely ladies - I'll see you next fall.
Goodbye my painted Ladies & love & kisses too you all!

A single Painted Lady

Thursday, October 6, 2011

Thankful For The DOC And Pulling Myself Up By My BootStraps.....

So it's been a rough ride these past 6 weeks and I have so much to come to grips with.
I miss my mother terribly and the the loss I'm feeling is indescribable.
I feel like I'm in some weird parallel universe and I don't like it one bit! I just want my mother back and my life to go back to normal, because this "new normal" is breaking my heart.
And I'm having a real problem putting how I feel into words - And when I sit at the computer to write about my feelings on the subject - I draw a blank.

But I can tell you that I'm so incredibly thankful & grateful for the Diabetes On-Line community! Without your love and support, I don't know what I'd do!!

The cards, emails, direct messages, cupcakes (Thank you Stacey Divone!) phone calls/voicemail and being there in IRL (Penny!!) have kept and continue to keep me going.

I can also tell you that I promised my mother I would be OK, and no matter what happens - I will be.

Mom and I were always honest with one another and I knew that if she thought I wouldn't be OK, she'd hang on. After her heart stopped and she coded twice, she never woke up and we were told she never would. She was on a ventilator and and starting to suffer.

So for her to hang on out of shear worry wasn't something I wanted for her. So I told her I'd be OK, and that if she wanted to go "home" to see see Daddy, Debbie, her parents, brother and sister and nephews, I'd be OK and to give them all kisses for me.

I loved my mother SO MUCH. She was in her mid 40's when I was born and our bond was so damn strong. She was my mother, friend and protector all in one - And I was her daughter, friend and protector all and one and together we were a force of nature!

Mom supported, was proud and accepted who I was - and who I wasn't and loved me no matter what! We laughed and we had moments when we fought fiercely, but the fights never lasted long, we never held grudges and we always told one another how much we loved each other.

Her house is now quiet without her laughter and sparkling personality, as is my heart.

But I'm happy that my mother lived independently up until the time she went into the hospital. She was always moving and doing and her social life was busier than mine!

She drove herself around in a 20 year old champagne colored caddy and everyone who came in contact with her LOVED her. Both her landscaper and mailman are heart broken by her death - I kid you not.

As far me, I've taken my mother's lifelong advice and have attempted to pick myself up by my bootstraps - even though I'm not so surefooted yet. I'm back working, back blogging and have many changes ahead of me in the next year. And all the change that's currently happening and will continue to happen is really scary.

My next post will be diabetes related, but from time to time, I'm going to write about my mom and I hope you'll all understand why. LOVE & THANKS!!!