Thursday, May 30, 2013

Vlog Post: Dr. Electrode - STOP JUDGING ME

I'm not a perfect person and I'm not a perfect person living with diabetes - But that doesn't mean you have the right to judge me or make me feel guilty because I have Diabetes..

So I tried to vlog about Dr. Electrode and being judged last week - And for some ungodly reason what should have taken 15 minutes with iMovie took 2+ hours (1:50 with apple support,) and the damn videos still wouldn't synch up!

But after reading Melissa Baland Lee's beautiful and truthful post about the word COMPLICATION over at SweetlyVoiced.com (READ IT,)I was inspired to attempt this vlog post again in PhotoBooth. 

The vlog post is far from perfect (there might be some rambling) and I am by no means the perrfect diabetes patient or video editor for that matter, but it's how I feel!
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Wednesday, May 29, 2013

Not Quite Wordless Wednesday: One Ticket To Farhampton, Please.

So the cat's out of the bag and I can FINALLY talk about it!!!!! 
As many of you already know, my niece Cristin Milioti was cast as the "MOTHER" in "How I Met Your Mother!" 
The season finale (where she made her first appearance,) aired on Monday May 13, during Diabetes Blog Week - which I was participating in full throttle - But I did tweet and post about it on my Facebook page - Like, A LOT - As did many of you!
Cut to last week, which was all about gathering info re: diabetes donations from D companies for PWDs (people with diabetes) in Oklahoma effected by the tornado & in need of diabetes supplies, and dealing with nerve tests jacking up both hands & wrists in regards to a nasty ass case of carpel tunnel!
So yeah, I'm just getting around to "officially" posting about it now. 

I am beyond thrilled and proud of my girl! 
I've had the amazing joy of seeing her in all of her performances since she was little, and then watched over the years as the rest of the world discovered what Cristin's family has known all along - SHE'S MAGNIFICENT.

Speaking of Joy, I LOVE, LOVE, LOVE the fact that I've had the opportunity to share Cristin's most recent career milestones  with the Diabetes Online Community these past 5 years. 
And being able to share wonderful news about someone I love so much and am so incredibly proud of, with a community I love so much & so am incredibly proud of, was and IS indeed the fantastical gift that keeps on giving! 

Photo Courtesy of  the "How I Met Your Mother Facebook Page"

Tuesday, May 28, 2013

Medivizor: Customizes Your Diabetes News & Keeps It Organized & In One Place


Diabetes infiltrates both my personal and my professional life  24X7, and the same can be said for my inbox. 

I don’t know about you, but my inbox is bursting at the seams when it comes to emails about any all things diabetes related. I try and keep up, I really do.  But I won’t lie to your or me for that matter, 
and I can’t keep track of all my diabetes emails, especially when it comes to diabetes studies, trials and the latest and greatest in diabetes news, re: breakthroughs, reports, etc. 
I’ve tried creating different diabetes folders for D studies, trials & news - And that works for a while, until it doesn’t. 

So lets back track to a few months ago, when I received an email from Medivizor's Chief Operating Officer,  Ronen Keinen, telling me all about their services and inviting me to be an Early Adopter. 
Ronen explained Medivizor in these words: Medivizor provides personalized information updates for people with serious or chronic medical conditions - cutting edge research, new treatments, clinical trials and more in a way they can understand and act upon. Our mission is to bring our users the information that is relevant and specific to them by finding "the needle in the haystack". 

And even though I was a little weary (because a lot of startups reach out to me pitching their sites and quite frankly, a lot of them are crap and don't benefit the patient,) but I was incredibly interested in hearing and learning more because what Ronen from Medivizor was telling me. 
WHY? Because what Ronen was telling me in the phone conversation that followed his email, had me thinking that Medivizor (an Israeli start-up with 15 employees and offices in Nevada,) had the potential to be a very good thing for people with chronic illnesses or diseases - not just diabetes.  
SIDEBAR: Currently Medivizor supports only diabetes, breast, prostate, colorectal & skin cancers - but are in the process of adding more conditions.
Medivizor’s Mission in a nutshell (and I’m quoting directly from the website,) is to: 
*Improve the lives of people with serious medical conditions and of those who care for them.

*Effectively apply software and the social web to the field of health for the betterment of humanity.

Ok, that all sounds great, but how do they do that? 

When you register, you have to answer a series of questions (up to 15) re: what conditions you’re interested in receiving info about about as a patient or caregiver or both, and what types of info(studies, research, etc.,) your interested in receiving.  
Medivizor pulls/filters articles that are personalized to your illness or condition and your interests, in essence making the notifications you receive tailor made to your specifications - And as the daughter of an actual tailor - I appreciate a good customized fit in all dimensions of my life.

But Medivizor goes one step further.. And turns my Medivizor Personal Space Page into a personalized repository of articles, treatment options, trials, etc and all stored one place .... Other than my inbox. 
And that’s what really got me excited - Not only was it a one stop drop and shop for all articles diabetes related, everything was stored in one easy to organize location.

Medivizor notifies me every few days about articles (from actual medical journals) they think I’d be interested in, and the fact that all the data is stored in one place that I can go to and read whenever I have a moment is key. 
I also like and appreciate the fact that the Medivizor team has the info in an easy to read formant - I’m not a Doctor, so the fact that the info is written in laymen’s terms is greatly appreciated.
   
The Personal Space Page also makes it easier to keep track of the information - And as for as privacy re: MY medical info? Medivizor "is HIPPA compliant."  

As I stated previously, I like the fact that I can choose the “when,” when it comes to reading these articles, but the fact that I can also rate the articles on content, readability and relevance is a huge plus - Not to mention the fact that I can discuss articles in detail with other Medivizor users if I choose to.

Medivizor also makes it easy for me to take notes & highlight the articles on my PS (Personal Space) page, and send article links to my healthcare professional(s) or anyone else I think might find the subject matter interesting, as well as post and or tweet a link to a brief synapses of the article, which can be accessed in its entirety if you are a Medivizor member. 

So how do you become a member of Medivizor since it currently invite only? 
Easy, you request an invite via info@medivizor.com or going to Medivizor.com and you’ll receive your invite via your inbox. 

Bottom line: There’s a great team of folks behind Medivizor & it’s my sincere hope that Medivizor flourishes and grows exponentially because I think the services and values they provide are not only relevant - They are very much needed and incredibly beneficial to every person who wears the titles Patient and or CareGiver. 

Medivizor can be found on the web by checking out the following links:

Thursday, May 23, 2013

Diabetes Companies/Orgs Contact Info Update For Oklahoma Tornado Survivors


After Joplin, I wrote a post that had a list of diabetes resources/ 800 numbers for those people living with diabetes and involved in national disasters. After national disasters, smartphones are the only mode of communication most people have. And even though phone lines and power lines are down, many in the area hit still can communicate via texting and smartphone internet access.
 That communication is key and social media helps people to find (and find out about) loved ones. 
On a personal note, the only way I could communicate with my loved ones during and for day after Hurricane Sandy was my via my phone (only texts,) my iPad and my data plan. 
I'm in the process of updating the (and will add new info as I receive it,) diabetes contact info list for Diabetes Companies/Orgs providing diabetes meds/supplies for those people affected by the Oklahoma, tornadoes.  

 Here's the info I've confirmed and more updates are en route!!! 

And if you have any info to add, please leave a comment with the info! 
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Insulin: 
Updated on 5/29/13 at 9:27 am, EST 
Last week Sanofi donated Lantus to their primary charity partner Direct Relief and are currently in the midst of donating more Lantus, as well as Apidra.  
Direct Relief works directly with Health Care Professionals (mostly clinics and community centers) who provide medications at no cost to people living with diabetes and who qualify financially in the affected communities.  
Those in need should consult with their HCPs ( Health Care Professionals), and HCPs can contact Direct Relief directly at 805-964-4767 to discuss if their patients qualify.

Lilly  Updated on 5/24/13 at 4 pm, EST
Eli Lilly and Company has been working closely with community leaders in Oklahoma to understand what the needs are and how they can best be met. 
 A donation of insulin http://www.hearttoheart.org/ (facebook page is HERE) 
 is being delivered today (Friday, May 24th) and Lilly will continue to work with nongovernmental organizations to provide insulin to local partners for patients in need.   
Eli Lilly & Company has activated their Product Disaster Replacement Program, which includes vouchers for products in need, product replacement, and replacement of samples to physicians. 
To access the Product Disaster Replacement Program, call The Lilly Answer Center at 1-800-LillyRx (1-800-545-5979).
Additionally, Lilly employees throughout the U.S. who make a contribution of $25 or more to the American Red Cross and the Salvation Army will have their donations matched by the Lilly Foundation.

Novo Nordisk has delivered the following supplies to the locations listed below: 

Location
Med Care United Charitable Pharmacy
711 Stanton L Young Boulevard,St 100
Oklahoma City, OK 73104
Tammy Herd –  405-863-2433
The pharmacy received the following this morning:
NovoFine® 30G        3 boxes        
NovoFine® 32G        4 boxes        
NovoLin® N                       50 Vials                
NovoLin® R                       50 Vials                
NovoLog®                         50 Vials                
Levemir®                         50 Vials                
NovoLog® Mix                   162 FlexPens     
NovoLog®                         162 FlexPens     
Levemir®                         162 FlexPens     
Victoza®                          160 FlexPens     
Second Shipment
Trinity Church of the Nazarene
7301 S. Walker Ave.
Oklahoma City, OK. 73139
Phone: 405-632-3307
Contact person – Jennifer Lester
This is a mobile clinic that is using the Church as their base, it is called Heart to Heart and is a partner of AmeriCares.  People can reach out to Jennifer to find their current location.
Insulin Pumps: 
Accuchek’s emergency number offers 24 X7, support: 800-858-8072
And if you or a loved one with diabetes only can communicate online via your smart phone access, you can reach out to Accu-chek via twitter at: @accuchek_us, because they are offering 24X7 support via twitter support.
Animas: Any Animas customers in the counties affected by the Tornado & in need of pump supplies need to contact their Doctor or Animas Rep. 
Reps and Territory Managers in those states and counties have been given extra pump supplies and will get the supplies to those in need, ASAP.
You can call Animas directly by calling the number on the back of your pump, or you can call this number, Toll Free: 1-877-YES-PUMP (1-877-937-7867)
Medtronic:
“If you or your family needs emergency insulin pump supplies, please contact their Toll Free Medtronic Storm Hotline at :1-800-646-4633 ext. 64545.” 
twitter @MDT-Diabetes
Omnipod: Emergency hotline: 800-591-3455

Other ways to help: 
 Salvation Army: Donate online or text STORM to 80888 to contribute $10 to their relief efforts.

Operation USA: International relief agency that helps communities overcome the effects of disaster. 
You can donate online at: https://donate.opusa.org or call 1-800-678-7255

American Red Cross:  You can visit their website :  https://www.redcross.org/donate/index.jsp?donateStep=2&itemId=prod10002    or call them at:  1-800-733-2767. 
You can also text the word REDCROSS to 90999 to make a $10 donation.

You can access a list of more local area relief efforts by clicking, HERE & HERE. 

Sunday, May 19, 2013

Diabetes Blog Week Day 7 : Spread The Love, D Blog Style



Today is day 7 (can you believe it? ) of DIabetes Blog Week, and it's all about spreading the Diabetes Blog Week Love - And we were supposed to pick three posts from this week that either introduced us to a new blog we hadn't read before or a post/posts that had moved us to pieces.

To read more other Spread the Diabetes Love posts, click, HERE. 
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OK, here are  just a few of the many, many #dblogweek posts that inspired me this week!

Melissa over @ "SweetlyVoiced" had me smiling through the tears as I listened to her sing (and then played it again and sang along with her) to her own version of 'Seasons of Love' words and music video: Here's just a sampling of the lyrics that Melissa wrote, that say so much to me: 


"12 Million 29 Thousand 8 Hundred Minutes

How do you measure a hundred thousand close calls?

In truths that she learned,
Or in times that she cried,
In babies she birthed,
Or the way that she'll die?
It's time now, to sing out though the story never ends
I want to celebrate the love and support of my online friends."

And then to hear her sing them - I was blown away!
To watch the her video, click HERE and be prepared to be inspired, moved and amazed!

This beautiful and amazing "MEMORIES" post by Australia's own LazyPancreas, had me sobbing and crying and wanting to reach out through my computer and hug the authoress tight!
The  heartfelt emotions written on the page was beautiful and realatible & I'm so glad I read it!
For the record: Miss LAZY PANCREAS rocks!!!!

I LOVE THIS poem that our Meri over at OUR DIABETIC LIFE, wrote as a love letter and poem to her boys!  It made me cry and smile at the same time - And it was a window showing me the fierce and beautiful love a D Mamma has for her D children/child. And it made me once again so thankful to have been given the gifts of my parents and the incredible love of the Diabetes On-line Community!

Diabetes Blog Week: Day 6: Diabetes Art.... At My Fingertips~


This 'Diabetes Blog Week' post is a day late, technically it was supposed to be up yesterday - Blame my car's muffler & exhaust pipe cracked 50 miles away from home on Friday night. 

Long & expensive story, but all is well. Anyway, this post is about is about how diabetes inspires art in all it's mediums. I wrote this post back in January 2008, two months after I started my blog - And I still think it rings true today, and And I hope you like it. Click HERE to read/ see more posts about Diabetes Art~

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Freckled Finger Tips

My fingers tips are freckled with dots.
Dots that rest on callouses,
Calluses caused by continually pricking them with a lance,
Which pierces my finger tips for a blood drop -
A blood drop that is placed on a strip.
A strip that is placed in a machine
A machine that's a quick study.
5 seconds later a number appears
If the number is high, I feel tired and guilty
And I bolus accordingly.
If the number is low
I already know before it appears,
I shake, sweat, and feel light headed

My appetite is insatiable.

Quickly I grab the juice box and I try my best to remember the rule:
15 carbs at a time to treat a low blood sugar - yeah right!
If it's in the golden range of Blood Sugar Nirvana - I'm proud and relieved..
Until the cycle starts all over again. 
And the blood sugar testing never ends.
I find test strips everywhere,
And in places they were never meant to be.
The type 3's in my life yell at me regarding my test strip trail
I will never be a hand model...But that's Ok, 

Because life is sweet and I go with the flow~

Friday, May 17, 2013

Diabetes Blog Week, Day 5: Freaky-Deaky Diabetes Friday


Today is Day 5 of Diabetes Blog Week - And it's all about getting all types of Freaky Friday and swapping out our Diabetes DX with another disease - which is an interesting subject - And a difficult one. 
For a list of other peoples Swapping posts, click HERE  -And make sure to follow the Diabetes Blog Week hashtag of #dblogWeek on twitter!
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Swapping out my Diabetes for another chronic illness A 'la "Freaky-Deaky Diabetes Friday??   Hmmm, that's a toughie!
 Yeah.... here's the thing: I know what living with Type 1 Diabetes is like, and even though I may not be the perfect patient with diabetes ( there's not such thing - and you're delusional if you think there is,) and diabetes is always changing the rules (just because it can,) I know my disease  - The good, the bad and the Diabetesalicious of it all. 
And while I may battle  Diabetes Burnout from time to time I still know my enemy/constant companion - Intimately and in all complicated (and complications) dimensions.
I don't want to swap diseases  with anyone else. 
And for the record, I believe that STUPIDITY and ASSHATTERY are indeed very real diseases - I'll take Diabetes any day!

This blog topic led me to Googling the term: "Diseases that sound fake, but are real," because that's just how my brain works. And there were some interesting articles written on the subject  - And some really interesting sounding diseases, that were indeed very real -Too many to blog about it in one post.  So I picked the following three diseases that are real but don't sound like they are,to talk about - But not swap my Diabetes out for! 

There's Medical Students' Syndrome: Medical students' syndrome is a temporary, hypochondria-like mental condition that strikes medical students, causing them to believe that they are suffering from the diseases that they're studying. By some reports, up to 80% of medical students experience it at some point as a result of studying such frightening diseases in such a highly suggestible environment.

Not so terrible... at first glance - But the more I thought about the worse that sounded. 
Here's the thing:  I start to itch and scratch if someone even mentions bed bugs, so forget about it! 
Living with diabetes is enough, but imagining temporarily suffering from every disease you studied in Med School?! 
Lets say I was a medical student and I was studying Irritable Bowel syndrome, and then all of a sudden IB symptoms would kick in - And probably at the most inopportune of times. And then If I was reading about Multiple Personalities disorders, all of a sudden I'd be having arguments with me and my multiple personalities, and with my luck at least one of them would suffer from Irritable Bowel Syndrome - NO THANK YOU. And I'm not making fun of IB or MPD in any way, shape or form. 
And there's something called Jerusalem Syndrome, which might be interesting to experience for about 5 minutes - Just because of the accessories and the dramatics involved. 
Basically, "Jerusalem syndrome is a form of religious mania resulting from, or leading to, a visit to the city of Jerusalem. Typically, a sufferer (of Christian or Jewish background) experiences a sudden religious fervor upon visiting the city, leading them to the belief that they are on a religiously significant mission and quite possibly that they are a specific biblical figure.
People experiencing Jerusalem syndrome often end up dressing in a white robe and delivering a sermon at a religiously significant site in the city. Since 1980, there have been an average of close to 100 cases per year reported. It's debatable whether or not sufferers had previous mental problems before visiting Jerusalem."
 But then I though about the mental toll Jerusalem Syndrome takes on the psyche of those who suffer from it. Imagine visiting The Wailing Wall in Israel, or The Dali Lama in Tibet, or Lordes France, and all of a sudden thinking you're some sort of Saint or on a mission from God, and the next thing you know, you snap out of it and are in the middle of a crowd who thinks you're crazy because you thought you were Joan of Arc, the son of God  or the next reincarnation of the Dali Lama. 
Not to mention the fact that I've been known to genuflect at various cupcake display counters across the country - Don't even get me started!
So yeah, white robe and theatrics aside, it's not worth it. 
Also, having a low blood sugars already makes me speak in diabetes tongues - So NO THANK YOU. 

The disease known as Synesthesia sounds sort of romantic and all types of artsy....at first.  
People with synesthesia ("synesthetes") associate a stimulus with one of the five senses not typically related to it. For instance, they may describe a certain sound as having a color. There are several different types of synesthesia, mixing sight, sound, taste and other sensory elements, and by some estimates, as much as 5% of the population has some level of incidence. It's a harmless condition and is often genetic, although some people have reported experiencing it as a result of a stroke or loss of sight or hearing. Perhaps because of its sensory nature, synesthesia is frequently reported amongst artists and musicians.
But the more I thought about Synthesthesia,the worse that sounded - Living with  diabetes, a disease that has the ability to affect your eyes, heart, arteries and kidneys is bad enough. 
But I love and find great joy & comfort in the Arts, and while I could deal with sounds having color (and words for that matter - I totally get that. For instance, the word "magnificent" always seems to me like it has an 18K gold shimmer to it,) the thought of having a stroke or losing my vision and or  hearing because I was seeing or hearing art in all its many wonderful forms but not in it's usual forms.. and then some, doesn't sound appealing at all - it sounds scary  - And it made me feel so sad for people who have been afflicted with Synesthesia. 
Living with Diabetes, may not be a walk in the park, but at least it's a terrain that I'm familiar with - And D is a part of who I am. 
And Diabetes has given me compassion, empathy and hope for others in spades - So I'll keep my busted pancreas,(and not wish a busted pancreati on anyone else, ever) and have heaps of compassion, empathy and hope for those who are living with their diseases - Those that are real, and those that are very real and sound fake.

 Everybody has something - And while the grass might look green on the other side, it doesn't mean that it is.